10 Reasons Why I Hate Fall

In homage to my blog sisters who wrote posts about why Fall is their favorite time of the year, I write this post:

10 Reasons Why I Hate Fall:

1.  Every one loves the cooler temperatures of Autumn.  I hate them, because the 30 to 40 degree temperature changes daily really do a number on my body.  They make what ever flares of my diseases or illnesses worse, and also start things flaring that have been previously calm.  I have my usual Fall Costochondritis flare that started about a week and a half ago.

2.  Everyone gets sick during this time of year.  I have had a wicked on and off virus, both Grant and Tyler have colds.  It is also allergy season.  You got sick, I know it because I read your tweets.

3.  It is my birthday at the end of this month.

4.  Even if I was happy it was my birthday, it would be ruined because I am always sick…because it’s Fall.

5.  It is Halloween and if I don’t treat my child to fall festivals, pumpkin picking and trick or treating I’ve got Sick Mom Guilt big time.

Boo on Fall!

I’d like to make Fall disappear!

6.  Last year my husband thought it would be nice to put out all my Halloween/Fall decorations.  That was nice, but guess who had to put them away?

7.  I like apple cider doughnuts, pumpkin pie, candy corn and Halloween candy…but they just make me fat.

8.  I love the freedom of summer…shorts, tee shirts, flip flops.  You don’t have to look at what the temperature is, you know it’s going to be warm and you know what to wear.

9.  I never know what to wear this time of year, I never seem to have enough in-between summer and winter clothes either.

10. In the summer you don’t have to blow dry your hair.  I go out with my hair wet, looking like white trash, but I don’t even care.  I am too tired to blow-dry my hair.

And the bonus reason why I hate Fall…It is too close too Winter!

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 159 Comments

Robert Schimmel: The Life and Death of a Comedian Forced to Become Invisible

Comedian Robert Schimmel died last month at the age of 60.

Whether or not you agreed with his lifestyle (he left his first wife for his daughter’s friend, and married and divorced her), if you knew his work you couldn’t help liking him.  He was just so honest.  I think of his life as tragically funny. Bob Schimmel had survived a bad blood transfusion, a heart attack and the loss of his 11-year-old son to cancer.

In 2000 he was diagnosed with Stage 3 Non-Hodgkin’s Lymphoma.  Due to his illness he was forced to bow out of his new sitcom that had just started production.

Throughout these hardships, somehow he was still able to make people laugh.  But in the last couple of years of his life he contracted cirrhosis of the liver due to the blood transfusion that he had had years ago.  He needed a liver transplant.

Those close to Bob told him he needed to keep his illness a secret or he would not get booked by comedy clubs and other venues.  His belly distended from the disease, he would wear a raincoat in order to keep his illness invisible so he could keep on working.  I know so many chronically ill people, including myself, who have been forced to hide their pain or fatigue just so they could keep their jobs. Forced to hide swollen joints, make excuses and keep on working through tremendous pain.

Earlier this year, perhaps no longer being able to to be dishonest with his audience, Bob revealed that he needed a liver transplant on The Howard Stern Show.  After that he received support from fans and new fans, many offering help, and even offering to donate part of their liver.  Perhaps people can be more giving and understanding than we sick people realize.

Ironically, Bob died as a result of his injuries in a car crash, although his poor health contributed to him not being able to survive the accident.

He is survived by his father, his sister, a brother, and five children.  I like to think of him now making them all laugh in Heaven.

SheKnows Entertainment was a contributing source for this post.


Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 5 Comments

Review and Discount For the Big Apple Circus!

I was given tickets to see this show.


When I first got seated last night and took a look around me under the Big Top of the Big Apple Circus, I have to admit I thought to myself “This circus looks really small”, but when the show started I soon learned that big shows come under small tents!

The Big Apple Circus is in it’s 33rd season with the theme of this year’s show being “Dance On!”  There is live music, great music, which had the circus performers as well as the audience dancing.  The circus includes, acrobats, monocyclists, juggling, and of course the Big Apple’s own Grandma Clown.

One thing that has prevented Grant and I from taking Tyler to the circus before is that Grant is very against circuses that use wild animals such as elephant, tigers, or bears.  The Big Apple Circus only works with domesticated animals such as ponies, dogs and goats.  Here is their statement on the care of their animals.

This circus is a great one especially for little ones seeing a circus for the first time.  It is not too loud, just loud enough for Tyler and the other children to dance like crazy.  We loved watching the circus through his eyes, and we enjoyed ourselves too!

Is this kid happy or what?

Is this kid happy or what?

Tyler is mesmerized but still managed to stuff his face with popcorn and cotton candy!

Tyler is mesmerized but still managed to stuff his face with popcorn and cotton candy!

Currently the Big Apple Circus is performing in Manville, in Somerset County, NJ until October 11th.

Would you like to save up to $25 per ticket?  Just go online to http://bigapplecircus.org/mommyNJ.aspx and put in the code MOMMY11  in the promotional codes box in the lower left of the page.

Or, by phone, call 888-541-3750 and mention code MOMMY11.

This is a circus I feel your whole family will enjoy!

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | Leave a comment

…And Then I Panicked

This post was inspired by Mama Kat’s Writer’s Workshop.

It was early summer of 2007 and Tyler was about nine months old.  Grant had been put on a new medication and just wasn’t feeling right.  He was seeing “flashes” and was stuttering and shaking.  It was all happening too fast to see a doctor.

I was feeding Tyler, we were all watching t.v., when suddenly Grant began to have a seizure!  I had never seen one before but it’s something you know when you see it.  And then I panicked. I still feel badly about it, but I practically threw Tyler on the ground and went over to Grant. Tyler was screaming, mostly because I was.  I dialed 9-1-1 and told them what was happening. They are telling me to calm down, stop crying, yeah right!

Grant seemed to have stopped and I calmed down, but about 30 seconds later he started to seize again. The 9-1-1 operator told me I had to get Grant to lie down on the floor on his side, but Grant was fighting me through the seizure and of course he is stronger than I am.  We fell from the couch to the ground, I was wrestling him.  I truly thought he was going to die. By the time I finally got him on the floor he had stopped seizing and the EMTs were here.

I so wanted to go with my husband to the ER but I had a little baby depending on me too.  It felt strange letting Grant go alone.  Luckily, one of my neighbors came after the ambulance pulled away and she volunteered to stay with Tyler and put him to bed so that I could go to the hospital.

I went and stayed with him for a while, helped him settle into the ER and then had to go home to Tyler. I learned how it felt to be torn in two and it was the first time I realized that Tyler had to come first, no matter how sick Grant was.

It turned out that Grant had a reaction to the new medication and has since avoided it, with no more seizures.  But it was definitely one of the scariest times of my life and so hard to choose between the two people who mean the most to me in life.

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 3 Comments

Tuesdays With Tyler: And Family!

I didn’t feel any better for the rest of my trip and wound up staying home on Sunday too.  Still feeling sick now too, but that’s not what Tuesdays With Tyler is all about!  And this post is all about family!  I felt so good knowing that Tyler got to be with his grandparents and Grant got to be with his parents.  It had been so long!

P1040713

Here is a happy Tyler with his proud grandpa.  Every so often Tyler would ask me, “What’s his name again?”

P1040721

Three generations of Cullen men with their Pez!  And all of them are truly Pez Heads! Tyler has almost a hundred Pez but he was in awe of Grandpa’s “Pezatorium”  where he probably has a couple of thousand.  It is amazing!

P1040718

And Grandma joins the group.  She was so funny.  She’s in her bathrobe and pajamas and still insisted on putting on lipstick.  “My picture might be seen by thousands”, she said.  I should get so much traffic!

So, as you can see a good time was had by all, even me, who got to share in the joy and love. My mother-in-law told me to count my blessings and I will get more.  Grant’s mother and father are definitely a blessing to me, the best in-laws a wife could ever ask for.

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 1 Comment

Feeling Crappy in Cleveland

After our flight being delayed for two hours we made it to Cleveland.  Tyler did very well coping with the delay and loved the flight.  Plus for our inconvenience the airline gave the whole plane Direct TV so Sponge Bob kept Tyler very happy and calm, even when the pilot said we would have a bumpy landing.

I thought I was getting better with this virus but this morning I felt worse than ever!  I decided that I would stay home and everyone went to the Museum of Natural History.  I slept the whole time they were away but feel no better!  Tyler was telling me all the things that I missed and I was holding back my tears.  I am feeling really angry at my Lupus because this is why I cannot shake the virus, or, perhaps it is a Lupus flare. 

Of course, the whole purpose of us being here is so that Tyler and his grandparents can enjoy each other and that mission has definitely been accomplished!  It makes me feel so good when I hear Tyler saying “Grandma” and “Grandpa”.  And my in-laws are so understanding of my illness.  I have laid around, unshowered in my pajamas, mostly in bed all day.  I am really thankful for them.

Tomorrow we are going to the zoo, but if I don’t feel well I will skip it because the next day we fly home and I will have no choice but to act like a well person, no matter how I am feeling.  I feel sad but at least everyone is having a good time.

Thanks to everyone who has been commenting.  I am on my father-in-laws’ laptop and I don’t want to spend too much time on it, but I’ll get back to you all when I get home.  And I will post pictures!

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 2 Comments

Over the River and Through the Woods…

Okay, so we aren’t taking a sleigh, but we are going to grandma’s house…and grandpa’s! Tomorrow we are flying to Cleveland.  My in-laws, who treat me like a daughter, have not seen my son in so long!  I can’t wait to see their faces!  We’ll take lots of pictures and plan to go to the zoo and The Museum of Natural History.

Unfortunately, I have been sick since Saturday with what my doctor thinks is the adult version of hand, foot and mouth disease.  It’s just got to get through my system (and hopefully not infect anyone else!) and it’s taking me longer since I am on an immunosuppressant drug. Hopefully Tyler passed it over to me and he nor anyone else in my family will get it.  I’m supposed to rest but I’ve got to pack, do laundry…you know how that goes.

Anyway, just letting you all know because I do not know how much online time I will have, just in case you go missing me.  It’s just for a few days, I will be back next week.  Until then be well or as well as you can be!

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 1 Comment

Finally Ready to Tell Our Story

This post was inspired by Mama Kat’s Writer’s Workshop.

Tell us about a day you were sure you wouldn’t get through.

When I saw this writing prompt something immediately came to mind, the worst day of my life. I didn’t know if we were far enough away from this nightmare, but I knew that someday I would want to write about it and be connected through a place where this story would be seen and maybe shared, and I knew a lot of people take part and read Mama Kat’s Writer’s Workshop. So I asked my husband for permission, asked because it was his nightmare too, and he has finally agreed to let me tell my story. Some who have known me may already know about it, but most of you probably don’t, and it is a story that deserves to be heard.

Last year in early January, the Director of Tyler’s daycare took it upon herself to get some weekend “help” for us. With my husband and I being disabled, weekends can be hard for us, but certainly not impossible. She had never asked our permission to do this and I had made the mistake of telling her TOO MUCH about our lives. What came from her call was that children’s family services had just started a new program that was seeking to help families in need. We were a little nervous but were told by the Director and by the state caseworker that we shouldn’t be worried.

The interview with the case worker in January seemed to go well and she felt we could be helped. However, in the evening, the case worker was back. Everything we had said in the first interview was turned against us. She started to ask medical questions, wanted to know who our doctors were and what medicines we were taking. Grant was not home at the time, it was just me and two-year-old Tyler, who cuddled in my arms. I didn’t know why this was happening, this was a voluntary program! But she told me we were now under investigation! I was in shock, who would have registered a complaint against us? What evidence was there? She even “offered” me the option to take Tyler away that night and put him into foster care if I felt he was too much for us! Of course I refused! She told me that due to our low income and disabilities that we were “at risk” to abuse Tyler in the future!

Two days later we called the caseworker and she had changed her story. She said that there was no complaint against us, that there was no investigation going on and that Tyler was in no danger of being taken from us. We taped this phone conversation. We told her that since there was no investigation going on and that this was a voluntary program for services that we declined the program. We thought that this frightening turn of events was over and that we would never hear from Social Services again.

On Friday afternoon, January 24th, Tyler was taken from daycare by Social Services. He was woken up from his nap, taken by someone he didn’t know and taken to a doctor to check for signs of “abuse”. When the Director of the daycare called me she was near to tears, apologetic…but I just started screaming. Tyler was kidnapped from us, that was the only word for it. I had to be heavily sedated and my friend came over to stay with us, as well as my mother. Having a friend in Social Services in another state, we had prearranged for my Aunt and Uncle to be Tyler’s foster parents as a worst case scenario, so he was sent there although he did not know them very well. Social Services did not tell us why they had done this. A child is supposed to be in IMMEDIATE danger for them to be able to take a child away. We were to have a hearing on Monday, but we had no idea what we had done. I was not even allowed to talk to Tyler.

Losing Tyler and my pain over what he was going through, I feel like it was one of the closest things you could come to to actually having your child die.

We went into court on Monday and that was the first time we had a chance to read the “complaint” against us. It said that due to our disabilities we were not diapering our son nor were we feeding him! And those were the good parts. It was all a bunch of horrendous lies! The lawyers had to speak with each other and we had to speak with our Public Defender who was very good. She had to explain everything to us and we had to tell her that this was all based on a misunderstanding. We got such a late start that the judge said to hear this case would put her behind schedule and she wanted to move it to tomorrow! I was giving it everything I had, it was quite a strain already; how could I do it again: getting up at 6:30, doing my hair and makeup, putting on nice clothes, (all which my friend helped me do) walking so much, plus the stress! And how could I spend another night without my baby?

All of the lawyers talked behind closed doors and it was decided that if all of us (Grant, my mom, myself, etc.) would come down to the Social Services office we would make a “Safety Plan” and if we agreed to it, with my mom staying with us, Tyler would be able to come back that night! So that is what we did. At the meeting the Social Worker’s supervisor said the program that the Director of the daycare had referred us for was not in place in our county yet. The “lighbulb” went on! Grant and I realized what had happened!  The Director’s referral was treated like a complaint and the caseworker was too stupid to realize the difference!

We signed the Safety Plan and Tyler came home that night.  Our lawyer said she had never seen someone get their child back at the first hearing!  We ran to the social worker’s car to get him.  He saw me first.  “Mommy!, he said.  Then he looked at Grant. “Daddy!”  I was so excited, this “disabled” person lifted her son our of the car and took him all the way up to the second floor in her arms.

On Tuesday we were in court again.  There were many lies told by the Social Services lawyer during the hearing, such as that we didn’t diaper Tyler, we did not feed Tyler, our house was “cluttered”.  I was so angry.  I took notes and I told my lawyer I wanted to testify. Among other things I said that just because it is hard to diaper Tyler does not mean that we are NOT diapering Tyler. We diaper him every day, as often as he needs. And just because I found it difficult to cook home-made meals did not mean he WAS NOT eating. And that our house was as cluttered as much as anyone who has a two-year-old and that we had a professional cleaning service every two weeks.

Our lawyer moved to have the matter dropped but the judge said she wanted Social Services to supervise. We had to go to court every so often, and we had to have someone else with us in the house with us at all times when Tyler was home.

We agreed or we could not get Tyler back.  For nearly six months we were subjected to being watched by health aids and being dropped in on by Social Services.  Finally, after six months our case was closed.

I am very angry that they view disabled people as helpless!  How can the government get away with this?  With their reasoning, anyone who is low income or sick is a danger to their kids.

Tyler has never been the same since.  The baby who slept through the night even when he was sick has never slept through the night since.  He suffers from Tourette’s Syndrome, Separation Anxiety and possible OCD.  A doctor told us that while technically he cannot remember what happened, it is “imprinted” on his brain.

Ever since then I let few new friends in on my condition and am careful about what I write as well as writing under a pen name.  I would never joke as so many of the other moms do that I need a drink after dealing with my child.  I worry when Tyler falls and gets a bruise.  I am so afraid of anything being taken the wrong way. I thought this was America where you were innocent until proven guilty but it was not the case for us.

Although time has healed me somewhat, I will never forget the day they took my baby away from me, just because I was sick.

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 26 Comments

Win Tickets to See Curious George Live!

I have been given a four pack of tickets to see Curious George Live, although I have not seen the show yet.

Curious George was a favorite of mine as a child and I couldn’t wait to read the books to my son. When I learned about the Curious George series on PBS I was skeptical.  It was drawn differently, of course, and how could it live up to the original charm of the books?  I watched it with my son and was very pleasantly surprised.  We both love the show, the stories are good and he can even learn a little something from them.

Now Curious George is starring in his own original live musical stage production!  He’s on a mission to help Chef Pisghetti save his restaurant with some help from his friend, The Man With the Yellow Hat, of course!  It is 90 minutes of singing, dancing and audience participation!

And now Curious George Live is coming to the State Theatre in New Brunswick, NJ and it’s your chance to win a family 4-pack of tickets!

Tickets are for the Saturday, October 23, 2010 show at 3:00 p.m.  Please do not enter this contest if you, or the person you are trying to win these for cannot make this show, as it is not exchangeable for another day or time.

You have two chances to win! 1. Comment below and 2. Tweet this contest out.  Please let me know you have tweeted this by making another comment. So you will have two entries then, two comments.  The contest will end on Tuesday, September 28th at 11:59 p.m. EST.

I have extended this contest until Wednesday, September 29th at 11:59 p.m. EST, due to my blog being down for a time yesterday.  One more day to enter!

If you are not a winner but would like to attend the show the schedule is as follows:

Saturday, October 23rd, 11:00 a.m & 3:00 p.m.

Sunday, October 24th, 1:30 p.m.

Monday, October 25th, 10:30 a.m. & 3:00 p.m.

For more information contact The State Theatre.  To find out when Curious George Live will be coming to your town check out the website.

Good luck!

Congratulations to Suezette on winning the tickets to see Curious George Live!  Her entry was picked by random.org.

Thank you to all who entered!  If you would still like to go to the show, see the ticket information above.

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 14 Comments

The End of Invisible Illness Awareness Week, 2010

As we wrap up Invisible Chronic Illness Awareness Week, 2010, I end with my part in this year’s project, which I wrote about here.  With the theme being “Each One Can Reach One”, the idea was to put sticky notes in places where sick or even healthy people might find them, with the website’s address.  Even if the person who found them didn’t go there, at least they knew someone cared.

I had a lot of fun putting up my sticky notes.  I felt a little like a secret agent, and no one ever caught me:

At the Pharmacy

At the Pharmacy

At the Book Store

At the Book Store

At the Rheumatologist's

At the Rheumatologist's

At the Psychiatrist's

At the Psychiatrist's

How did your project go?  If you didn’t do the project, whether sick or healthy, what do you think about it?  How does it make you feel?  Do you feel the people who took part in it were successful in reaching one or more?  Who got the most out of it?

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 4 Comments