The Very First One

Hello!  After a few months of hemming and hawing along with many life and health crises that I hope will make this blog interesting, I have decided to say To Hell With It and just get going!   I am just going to have to learn as I go because I just don’t feel like getting out a Book for Dummies any more.  

Although this is the first blog that has been all mine, I have been contributing for almost a year to New Jersey Moms Blog, a subsidiary of the Silicon Valley Moms Group and have done a few guest blog posts.  So, I’ve got some good experience blogging, but technically I am pretty clueless.

As you can tell from my blog’s name, mama is sick, very sick.  I’ve got Lupus and a host of other goodies, with Lupus being diagnosed shortly before my son, “Tyler’s,” second birthday.  My husband, “Grant,” is also ill, although to respect his privacy I will not be delving too much into his illnesses.  

I hope to appeal to parents with disabilities and chronic illness, chronically ill people who may wonder what it might be like to have children of their own, and all parents in general.  I have always described myself in 3 short words:  Mother, Wife, Sick.  I also hope to break down the prejudices of disabled and chronically ill people who do not appear to look sick.  Maybe to change some people’s perceptions about why someone who looks as if she is the picture of health might need a wheelchair or a disabled parking placard.  Lastly, I also hope to show people through my life how to be a better advocate for you and your family’s health, whether you are ill at present or what you need to know should something like this happen to you. 

Lastly, I will end with a Mom thing.  If  I am able to do it, I put Tyler to bed every night and thank God that I can.  The bed ritual includes rocking him, saying our prayers and talking about the good dreams he will have.  Tonight was one of those nights where my ever growing two-and-a-half-year-old seemed to fit perfectly in my arms once again, he fell asleep in a few minutes and stayed asleep when I put him in his toddler bed.  A parent’s hat trick for sure.

Thanks for coming to my blog and reading my first entry which I will probably question the quality of for the rest of my days!

Special thanks also to Jonathan Dingman of Fireside Media, who pronounced my blog seaworthy and said I just had to start blogging.

Here we go!

 

 

 

 

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.
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11 Responses to The Very First One

  1. Jill says:

    Well, congrats on taking the plunge! Hopefully you will find blogging to be a great creative outlet and a wonderful way to share your story and inspire others. Good luck and have fun!

    Jill’s last blog post..Screw you, robot. Don’t you speak frazzled mother and toddler?

  2. I look forward to reading your blog and I really love your design 🙂
    I have just recently been diagnosed with Lupus and I am also a mom. I have been very fortunate to not be too very sick so far, but it is always a challenge on some days.
    Best of luck with your blog and I look forward to tuning in 🙂

    Brandee (gypseemom)’s last blog post..Apparently my spoons ran out, lol

  3. I am so glad you took the “plunge” into blogging! I’m a big “fan” of yours on Twitter and NJmomsblog and look forward to reading more here!

    I also want to say, I LOVE LOVE your blog header!!! That is awesome!!! Who did that for you?????

    ~MT

    hellokittiemama/MT’s last blog post..Gluten Casein Free Dining Review: Bella Vita Cafe – Freehold, NJ

  4. You DID it!! Woo-hoo. See, not as terrifying as you predicted, huh? Betcha you are saying, “what was all the fuss about?!”
    All the best to you, in blogging, and more importantly, in health.

    Playground for Parents’s last blog post..Tasty Tuesday

  5. Nydia says:

    Yea! You’re blogging on your own blog!! This is a perfect first official entry … And especially since I’m feeling a bit under the weather … So this mama is also sick!

    Your blog is sure to bring up alot if important issues with regard to illness and especially Lupus … I know a couple of people with this particular illness … It’s great to see that ur able to raise ur baby while dealing with your various health issues …

    I look ever so forward to following this blog!

    Nydia’s last blog post..Photo-of-the-Week: The Return of Baby OCD …

  6. Klgangle says:

    No I am not a hater(via twitter)I stumbled across your twitter and followed for a while and read all about your situation The info I have is not from me knowing you personally but from what you twittered about.If that is how you determine I know alot about you then perhaps you should reevaluate what you put on the web as every question I asked you about money,help,daycare,you and hubby being home and inlaws paying your way(along with your mom who hubby now has to be nice to since she is supporting you financially)are all things that YOU SAID on twitter in the last month.I am just asking a legit question How do you defend that?You cant have expected to not have to have people question things when you expose your situation.

  7. linda says:

    Klgangle – emily is sick with lupus. Look it up and see how it robs your life.
    Mamasick – love the design!

    lindak

  8. Klgangle says:

    AND?I am totally aware of what Lupus can do to your life,health and your physical and emotional well-being.I was diagnosed with Lupus myself in 2007.I do not have Rheumatoid Arthritis(although I do carry the Rheumatoid Factor)I also have an overlap of Sjogrens Syndrome(AI illness that attacks your eyes,mouth,etc and can affect organs also)Fibro as a tagalong and Myofascial Pain Syndrome.So I am probably alot more familiar with what she is going thru than you realize.Lupus is a harsh disease(although I do not consider my self a cripple)I too am Mother(2)Wife,and Sick.I too have been prescribed Chemo/organ transplant anti-rejection meds,steriods and a host of others.I am well aware of all the ramifications of this illness.I simply ask how she defends her choice as a SLE patient to continue to live off of the monies of others when her and her hubby are both home(with help)and also moved her son to a even more expensive daycare.I am sure this too will be removed and go unanswered.And quick as can be a fail-safe put into place so that all comments not deemed worthy will be author screened and removed(which I think is the biggest hypocrisy of blogs there is-if you want to portray and put your life out for people to read about they should be free to comment and ask questions or you should remove the comment portion and up front add a disclaimer that only comments that build up the post/author are allowed and nothing controversial or negative is allowed)Life is hard.So is any illness.Lupus is tough.I cannot believe I am the only person who reads her twitter that thinks these things I guess I was the only one who had enough to finally ask question.I hope that people dont read this blog and think that this is how all Lupus people end up.You most certainly can live with this illness.You have to make the choice to fight not take to your bed.

  9. df mercedes says:

    Emily, I have a family member who has lupus and has had it for over 20 years. That prompted me to search out other people with lupus quite a while ago. Someone I have been in contact with for two years led me to your twitter page.

    My family member has had lupus for many years and was so ill she nearly died twice. She was able to reduce her pain meds, have her maintenance drugs adjusted and works a 45 hour week in a high-stress job. She also has a husband and active teen-aged children.

    Lupus doesn’t always rob one of life to the point of being bed-ridden. Since you posted on Twitter about the details of your illness, the way you depend on your in-laws and mother for financial support, and your inability to care for your toddler, then asked us to come read your blog, you opened yourself and situation up to questions.

  10. @Klgangle :
    Youhave every right to your opinion.

    Now that that’s out of the way:

    The comments on a person’s blog are not protected by the first amendment. If the author chooses to keep thir blog as a safe, happey, drama free place where they and their readers may go to commune in peace, then that is ther perogative. I have personally only feleted one comment form my own blog, and it was form my father. I was well within my rights. Emily Puts her life out there, yes. Yes, you have a right to ask questions. But that doesn’t mean anybody is obligated to answer them.

    If you’re offended, bothered, or otherwise irritated by the contents of her Twitter feed and her blog, then un-follow her and stop visiting the blog.

    @Emily, I hate you. You post one post and get at least 10 comments. I’ve had my blog up for almost two years and get bupkis (It’s my own fault for not aggressively marketing it, not posting frequently, and not posting about anything anyone gives a rats ass about :p ). You suck, in the coolest way 🙂

    George Romaka’s last blog post..Scrambled Brain Commute

  11. Note to self: Proofreading is my friend. I apologize for my preceding massacre of the english language…

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