Health Update # 2

See Health Update # 1 for more background.

This week, though technically still not over, has been tough.  I’ve had three migraines in four days and have fallen really behind in…life.

I had an Orencia treatment today and in my latest bloodwork, my Vitamin D level has still not risen. My Rheumatologist said the Hyperparathyroidism is being caused by my low Vitamin D level.  I told him that my Gastroenterologist was doing further testing for Celiac Disease and he said that was good.  He also recommended I see a Endocrinologist as he said he no longer felt comfortable in treating me for the Vitamin D problem and in dealing with the other ways an Endo would get my level up.  I don’t even want to know what that means!  He gave me another doctor’s name.  I’m hoping she/he takes my insurance because so far I have been unsuccessful in finding anyone who does take it who has been recommended to me.

The only good news was that I gave the doctor my paperwork for my disability and he seemed very pleased with the work I had done on it as to make it easier on him when he filled it out. I’ve worked very hard on my disability application and am gratified to be finally starting to see results.  I am working with someone I met on the message boards of But You Don’t Look Sick who believes in doing a lot of work prior to actually applying, resulting in a quicker response and a higher positive response.  It has taken me more than six months to do this as I have had to fit it in between being sick, household responsibilities, caring for my son and my 12 + hours of sleeping!  I won’t know what to do with myself when it’s finally all done and given over to Social Security!

Another 3 day weekend ahead for us with Tyler’s daycare being closed tomorrow for the holiday.  I am even more anxious because of the deficit I have been in this week.  We have plans to go to a barbeque on the 4th with family.  I really like for Tyler to interact with my family, especially all of the kids!

Hope everyone’s holiday is explosively great!

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.

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