Disability Decision Limbo

Waiting to hear if I will get disability is probably one of the most stressful things I have ever gone through.  I know that it is responsible in a large part for an increase in my depression and anxiety. One of the things that has me stressed out in particular is that my Rheumatologist has STILL not gotten in the paperwork that was sent to him.  He’s had it for over a month!  Today my husband actually spoke to him and he told him that he has fifty patients needing disability paperwork.  FIFTY?  I am hoping that is an exaggeration.  I have called his office four or five times, he’s gotten repeated letters from Disability and now my husband has called.  I don’t know what else to do.

I have worked too hard on my disability application only to be turned down because of something out of my control.  I included paperwork from him when I applied for disability, I can only hope that it is enough.  But he is my Rheumatologist and most of my problems are Rheumatological!  I know doctors are busy but this is MY LIFE!  Plus I gave him tons of information, I don’t think I could have made it any easier.  I’d love to find a new doctor but good Rheumatologists are hard to find around here.

I just have to hope that what I did, how specific I got was enough and that my two other doctors who have gotten in their paperwork along with letters from former co-workers and friends will be enough to show that I am credible.  Getting disability for my family would be the first step in turning our lives around and make me feel that I am providing for my family once again, even if it is a lot less money.

With what my Disability contact said I will probably hear right around New Year’s.  It’s going to hugely impact how our 2010 will be.  I’m really ready for something positive to happen for our family.

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About mamasick

Emily Cullen is a pen-name. A former local radio personality for seven years, I still remain active in the voiceover business. My husband, “Grant”, and I have been married since 2002 and have already experienced the “worse, “poorer, ” and “sickness ” of marriage. We both suffer from chronic illnesses and diseases which have progressed. My diseases include Rheumatoid Arthritis, Fibromyalgia, and most, recently and seriously, Lupus. Despite all of the challenges we have faced, we were able to have a little boy, “Tyler,” born in September of 2006, which is the best thing to ever happen to us. Tyler has been classified as a “special needs” child with diagnoses which include Anxiety, OCD, and Tourette’s Syndrome. We also share our home with two cats. We live in New Jersey and I enjoy reading fiction and learning more about taking care of my son. Before my son, I used to enjoy watching movies…watching television for that matter! Before Lupus I enjoyed fine dining and fine wine. No longer able to work, I am now wondering, “What will I do with the rest of my (somewhat) young life?” Blogging sounds like a good start!
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2 Responses to Disability Decision Limbo

  1. daysgoby says:

    I’m hoping for you!

    I HATE having the doctor do any paperwork – holy crap, slower than molasses in January. You’d think they were trying to read their own handwriting!

    Hey, maybe that’s an idea…..
    .-= daysgoby´s last blog ..hazy shades of winter =-.

  2. Nancy says:

    I hope you get it! That would be a huge relief for you.

    I hate to mention this, but I’ve heard that when you apply for disability, that you automatically get turned down the first 2 times. I hope that’s not the case for you.

    Good Luck! I hope 2010 is a stellar year for you and your family.
    .-= Nancy´s last blog ..Blog, Bid, Help – Blogging for other bloggers =-.

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