Disability Update Report

The thing that has been causing me a lot of anxiety has come, my SSDI Update Report. It’s been three years since I won my disability case although I did not receive my benefits until March of the next year.

I truly feel that I still cannot work. I experience depression every day and am still having sleeping difficulties due to hypersomnia. I am convinced that working will be hard on me mentally and also believe that some of my physical problems have improved since being on disability.

I’ve been given a form asking me if I’ve been working, whether I have discussed with my doctors if I can return to work and if my health is the same, better or worse going back two years. They also want to know my hospitalizations and doctors’ visits. Then I just have to sign, date and give them my phone number.

I know that I cannot return to the career that I had prior to leaving work. It’s just too stressful and I worry that any job I get would actually have me making less money than what I am currently receiving.

So please send your prayers, good thoughts and vibes this way and I will keep you posted of the process. Also I would love to hear from anyone who has gone through a disability review.

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.
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10 Responses to Disability Update Report

  1. Angie says:

    i haven’t been through a disability review, but I HAVE been trying to get approved for disability since 2011. I’d have thought chronic pain after 4 spine surgeries and diagnoses of “failed back” and “failed neck” as well as documentation from pain management that I had tried and failed every treatment option, and a suicide attempt related to my chronic pain would be enough, but evidently not. Last I heard they still think I’d make a great night watchman, even though I can’t stand, sit, or walk for more than 20-30 minutes without needing to lie down. Go figure. Since I’m still “in the process” and buried in paperwork I wanted to warn you about two red flags in your post. SSDI would be all over the fact that your physical problems have improved since being on disability. That statement alone is probably enough to make them want to put you to work. And the fact that any job you could get would have you making less money than you make now? They’d have a field day with that. I was the primary breadwinner in my family, and I’ve emptied my retirement fund, declared bankruptcy, and will probably soon have my home foreclosed on and SSDI truly does not care.

    • mamasick says:

      Hi Angie, sorry it’s taken me so long to reply back, I’ve been feeling sick. I certainly wouldn’t highlight the things you pointed out. I was lucky enough to get the “short form” and I’ve been told by someone who’s been through the process that it means they’re not really expecting you to have gotten better. We will see. I am also sorry you’ve been having such a hard time getting disability. Do you have a lawyer? I think it’s almost impossible these days to go through the process without one. I can definitely relate to what you’re going through. My savings and 401k are gone and I am in the middle of bankruptcy. I really hope you can be successful soon. Please feel free to contact me if you have any questions going through the disability process such as going to a hearing or seeing SSDI’s doctors.

  2. Lisa Catera says:

    Maybe you could just tell them that you’re too sick to fill out the form? I know that sounds trite, but how do others get through it?

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