One of Our Own Needs Our Help

If you have a chronic, invisible illness you more than likely have heard of or even refer to yourself as a “spoonie”. If you haven’t heard the term “spoonie”, it came from Christine Miserandino’s The Spoon Theory as a metaphor for showing healthy people what it’s like to be chronically ill. The basic idea is that everyone starts the day off with a certain amount of spoons, or units of energy, but people who are ill use their spoons faster than those who are healthy. For example, it may take a healthy person one spoon to get ready in the morning but it may take a sick person five spoons.

I first read Christine’s “Spoon Theory” in 2004 and it came at a time when I really needed it most. I had been diagnosed with Rheumatoid Arthritis in 2003, leaving me with chronic pain, swelling and exhausted. I was losing a lot of friends and the respect of many family members, especially when I told them I couldn’t visit them for Christmas because I was just too sick. There responses ranged from “But young people don’t get arthritis” to “You’re too pretty to be as sick as you say you are.” Losing the respect of family and friends had me in a deep depression and I felt very alone. At the time, Christine’s But You Don’t Look Sick website has a forum where I literally came upon thousands of people who were just like me and who were facing the same issues! Christine’s work became a lifeline for me and still does to this day.

But now, the woman who has changed lives for so many chronically ill people needs some help of her own. Although I have known Christine to be very sick in the past, she always seemed able to accomplish anything and be strong for all of us.

To say that Christine is having the toughest year of her life is an understatement. In January of this year, she gave birth to a stillborn baby girl which was also life-threatening to her.

Christine has been undergoing extensive jaw and dental surgery. The 20 plus years of steroids for her Lupus have wreaked havoc on her mouth. In addition, Christine throughout her pregnancy was throwing up five to seven times a day. She also has a disease which leaves her with little saliva in her mouth. The effect of all of these things have left her needing six teeth extracted, four root canals and filings. Now her teeth are literally falling out of her mouth.

Her physical and dental issues have left her with a mountain of medical bills with more to come. Her parents, who have supported her throughout her life, have maxed out their credit cards.

I know Christine to be a very proud and private person and I know she would not be doing this unless she were in extreme need. A friend of Christine has created a Go Fund Me site for her with the title “Help Christine Smile”.

If you have been touched by “But You Don’t Look Sick”, “The Spoon Theory”, have the words “spoon” or “spoonie” in your blog or call yourself a spoonie, I urge you to donate whatever you can to Christine’s campaign. I realize that a lot of spoonies have their own medical bills or live on disability but even as little as $5 can go a long way. Millions of people know of “The Spoon Theory” and “But You Don’t Look Sick” and when you think about it, reaching her goal should be an easy one.

If you are a chronic illness blogger, I ask that you also post for Christine. Post, tweet, retweet, share on Facebook, etc. so everyone can know that for the first time in her life, Christine is asking for OUR help.

If you do not have a chronic illness, I also ask that you thank God you are healthy and donate whatever you can to the woman who has changed so many sick people’s lives.

Thank you.

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.
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12 Responses to One of Our Own Needs Our Help

  1. Blair miller says:

    I’ve needed help for years. I’m on ssi my teeth had to l pulled do to Sjogrens.stage four non Hodgkin lymphoma.Medicaid no drs take it on hmo Medicaid which is only type of Medicaid in Florida.living with abuse.I wish her the best of luck but I’m unable to help

    • mamasick says:

      Truthfully, I’ve not been able to help yet until I get my SSDI on Monday, I’m counting down the days as I often do. If you can’t donate and Christine has touched your life in any way, why not help by sharing this post or tweeting? You’re in my prayers nightly, Blair.

  2. Lucy says:

    So sorry to year this. As they say, I could be me next. Please send my Love my prayers and my appreciation for what she brought to me from her blogs. I will send what can to the fund. LucyO

    • mamasick says:

      Not to wish anything on you, Lucy, but you are so right. I was very successful before I became ill and have lost everything. No one knows what it’s like until it happens to you. Christine really helped me in my times of need and now I hope to return the favor. Thanks for stopping by.

  3. Catherine says:

    This is really sad. It often makes me question life when terrible things happen to good people, it is heart breaking. Thoughts are with her #weekendblogshare

    • mamasick says:

      When Christine lost her daughter, Catherine, her pain was so palpable, it almost broke her. I don’t know why bad things happen to good people either but I know how much she has helped me and I’m doing whatever I can to help her. Glad you stopped by.

  4. Catherine Elizabeth says:

    I have know Christine for many years…I would say 30+ years…we lived on the same block…we went to dancing school together…her father and my father where scoutmasters together…my brother and her brother where in Boy Scouts together and make Eagle Scout together…I know she is a very proud person and the difficulties she has been going through and for her to break down and agree to have others help her says a lot…I have already donated on her go fund me page…I was one of the first people to do it when it first came out and my mom is sending a check to her parents house to help…she has done so much for so many people…so many people she never will never realize…that it is now time to help her and wishing she reaches her goal and beyond…always sending love thoughts and prayers to her,Olivia and Ned as well as her parents because it hasn’t been easy for them either watching their daughter in pain and hurting constantly…I just wanted to thank you for posting this…the more people that spread the word the more help and support she will get!!!..❤️

  5. Oh mum goodness, I had no idea that she had been facing such a horrific ordeal on top of her lupus. She’s done so much to help so many that she deserves to receive so much support in return. Thank you for joining the #weekendblogshare
    Hannah Spannah´s last blog post ..My Slimming World Weight Loss Wednesday #1

    • mamasick says:

      Hi Hannah, One of the best things we can do to help Christine is to blog on it or at least share it. Here is her Go Fund Me link:

      https://www.gofundme.com/TheSpoonLady

      There’s also a badge you can put on your blog, which I have to do in the next couple of days. I will blog on it and share the link to get the badge.

  6. theresa says:

    Oh my gosh, this is so sad. It must be so scary to be going through this, and so stressful. My heart hurts for her, she’s so giving, and has helped so many. I really hope we can help you reach your goal<3

    • mamasick says:

      Thanks for reading, Theresa. Anything you can donate would be helpful, and if you can’t donate, share this blog!

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