About

Emily Cullen is a pen-name.

I suffer from chronic illnesses and diseases which have progressed.  My diseases include life-threatening conditions such as Lupus With Rheumatoid Arthritis Overlap and Bipolar Disorder.  My other diseases include Fibromyalgia, Interstitial Cystitis and Myofascial Pain, and I no longer can remember them all.

I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and has been the best thing to ever happen to us.  Tyler is a child with special needs and has been diagnosed with Tourette’s Syndrome and Obsessive Compulsive Disorder.

In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill.  I also strive to break down stereotypes of what a “Welfare Mom” is like.  Anything that I have gone through due to being sick, is written on the pages of Mama Sick.

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14 Responses to About

  1. Dear “Emily:”

    Enjoyed reading your posts about your precious son.

    “Tyler” is a beautiful little boy and I can see why you’d want to blog about him. I can fully understand the challenges you have with illnesses and the consequences because of them. My husband has interstitial cystitis, ulcerative colitis and fibromyalgia, takes tons of medication and is permanently disabled. It’s been the biggest challenge of our lives, since he was the strongest man I ever knew before. But we are finding ways to manage within the confines of his illnesses.

    I am curious, though. You mentioned you were a radio personality a while back. Why don’t you use your real name to get the word out about your blog, so that you can make some real income from it? With a high-profile name, you could rake in the bucks using affiliate marketing on your site, or even selling e-books or other products.

    Just curious.

    Wishing you the BEST with this blog.

    –Sherry
    Sherry Zander´s last blog post ..8 Easy Steps to Warm up Cold Calls

  2. Mike Maynard says:

    Hi Emily,

    Sorry you are having lots of problems with health and medication. I was sick for decades and I’m still far from well, but the chronic pain is no more. I was prescribed a simple medicine and it works like magic. It’s not suitable for you unfortunately. My point is you make the best of life, even if it’s filled with pain and hope for the best. It can happen. I have just stopped taking addictive drugs and I’m getting a better quality of life – and blogging!

    Best wishes from England

    Mike Maynard
    Mike Maynard´s last blog post ..Average or Typical

  3. Leonard Giso says:

    Thanks for following me on twitter, We are having a Lupus Health Expo 2012 in Atlanta, My wife has Lupus and I am determined to get a cure. I could use as much help getting the word out as possible. please visit our web site for the details on the expo, I am seeking Vendors that can offer help: Clothing, healthy eating, sun protection, ect. There is no miracle cure but there are steps that can be taken to manage the day better. Any help you can give me would be great. Feel free to call my office 877-467-7726 Leonard

  4. Barb says:

    I love that you’ve found blogging and writing so fulfilling and also using it to reach out to others. What a winning combination. Glad I stopped by. Best wishes to you, “Emily,” and to your family.
    Barb´s last blog post ..Winter Help to Get You Out the Door

  5. charles says:

    Hi Emily: I can see how blogging can be so fulfilling for you with your wonderful husband, children and pets.I have a similar story to blog about in the near future. I’m an living in the Philippines with my wife and two kittens in our five bedroom house. Yes it’s a big home for just us but I have the most wonderful visitors often. The children from the province are over often and on Sundays, we have a big dinner for them and their parents. Emily,such cute kids from the mudslides and recent earthquake are here all the time. I have so many pics. to post. I lived in the Province for six months before we moved to town so I know a lot of new friends in the foothills and the mountains. Those pics. of the foothills are at sandcommander. The kids, kittens and mountains will be posted at my google blog soon. To sum it up: These things and more keep me in high spirits through the pain .

  6. Shannon says:

    Haven’t seen you around lately hon. Not on Twitter, FB or your own blog. I hope everything is ok with you. Some of your #spoonie friends are really starting to worry :)

  7. Chrissy says:

    Hi Emily,
    I actually came across your blog as I was researching to see if anything like this was currently around. I, too, am a “sick mama”. I was diagnosed at 25 with MS, and also had cervical cancer when I was 31. I also like you have a little boy, mine is 4. I feel for you and understand alot of what you wrote. I don’t think a day goes by that I am not somehow reminded of what I have and question what is going to come. Not being able to work anymore either, I too am trying to figure how I can help people, especially young women who are going through life dealing with chronic illnesses.
    Wishing you healthiness!!
    Take Care,

  8. matt says:

    Hmm you have lupus among other things,this really sounds like symptoms of Lyme disease to me,it is so often misdiagnosed as other diseases.Have you ever been tested for Lyme?Or were you ever bitten by a tick?

    I suffer from Lyme and it sucks but I still manage from day to day,I still run a full-time business,but only through God am I able to do this.If I didn’t have God on my side I know I wouldn’t be here today!I’m only 21 and I have a whole life ahead of me yet some days I feel like I’m 90 years old LOL it’s crazy.Just thought I’d ask you about Lyme as your symptoms are just identical to Lyme and it is so often misdiagnosed it’s unbelievable.

    Let me know!

    Thanks and God bless!
    Matt

  9. Mike Maynard says:

    Hi Emily,

    I hope you are doing better. By a strange twist of fate, since I last commented here; I too, have been diagnosed with lupus. It is giving me a few aches and pains, but it seems fairly low level. We are having a lot of rain in England which is making life a little more challenging at the moment. I started a new website so things aren’t so bad! I think it’s important to keep busy and active. I shall be out taking photographs again, if the rain ever stops!
    Mike Maynard´s last blog post ..The Frugal Diet | Seafood.

  10. linda kaserman says:

    E- i’m not on twitter much – just read about you all having to split and move due to health – so sorry to hear. It must be so difficult on all of you. sending love, spoons and hugs. I hope it’s ‘working’ so far….
    linda

  11. Blair says:

    I so enjoy reading your blog .while I don’t have lupus ,I have a long list from fibromyalgia, mixed connective tissue disease ,sjogrens, raynauds, menieres , degenerative disc disease ,sarcoidosas & now stage 4 non hodgkins lymphoma. Sad to say that one needs a lot of $ to get the best medical care, I once did & as u know I have had to beg for the most basic care .

  12. Kathryn says:

    Keep searching, the answers you seek are out there. I know from personal experience that even the bleakest circumstances can be turned around.
    Best of luck,
    Kathryn

  13. Holly says:

    I recently discovered your blog. I am a mother with a chronic illness and I have been looking for others in similar circumstances. While I am always sad to hear another person is suffering through this, I am glad to find others who can relate to the challenges I face.

  14. karen lange says:

    Hi Emily,
    So sorry that you have so many awful conditions. I only have CNS lupus and that alone has caused huge problems for me. I can’t begin to imagine how I would cope with other illnesses on top of that! I wish you peace and patience on your journey

    I have a Tyler too, except he’s 20. But he was ten when I got sick and his sister was 7 so I too am a sick mama, which I feel so guilty about. I’ve missed so many important events in their lives and my lupus is not an invisible disease to them at all, so they have a hard time dealing with it.

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