As it could be a few more months before our money situation changes, hopefully, with me receiving disability, Grant and I have been talking about what we can cut back on and what we probably qualify for now.

We will definitely be applying for food stamps and heating assistance.  The things I am scared about are cutting back on child care and the meals we have delivered to us.  Tyler is in daycare full time, because we believe he is having a better quality of life than we are capable of giving him right now during the day, and because I need to rest or go to doctors.  I am exhausted after the weekend with him, forget a long weekend!

I still have trouble standing, plus with fatigue, even sometimes heating the prepared meals is too much, so my mind reels when thinking about making meals from scratch.  Plus with Raynaud’s Syndrome, touching freezing or even cold meat is very painful.  And cleaning up after dinner??

When you are chronically ill you find yourself spending more money on things, not less, out of necessity.  I am really worried that having Tyler home more often and me trying to cook again will only make me sicker, when I am trying to get to some form of health that allows me to function more normally.  Right now I am at the point where just getting through the day is hard as it is.

Yes, eventually we are still moving to Cleveland to be close to Grant’s family but we are waiting to see what the outcome of my disability application will be.  I just hate feeling so uncertain about our lives.

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.

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