Cutbacks?

As it could be a few more months before our money situation changes, hopefully, with me receiving disability, Grant and I have been talking about what we can cut back on and what we probably qualify for now.

We will definitely be applying for food stamps and heating assistance.  The things I am scared about are cutting back on child care and the meals we have delivered to us.  Tyler is in daycare full time, because we believe he is having a better quality of life than we are capable of giving him right now during the day, and because I need to rest or go to doctors.  I am exhausted after the weekend with him, forget a long weekend!

I still have trouble standing, plus with fatigue, even sometimes heating the prepared meals is too much, so my mind reels when thinking about making meals from scratch.  Plus with Raynaud’s Syndrome, touching freezing or even cold meat is very painful.  And cleaning up after dinner??

When you are chronically ill you find yourself spending more money on things, not less, out of necessity.  I am really worried that having Tyler home more often and me trying to cook again will only make me sicker, when I am trying to get to some form of health that allows me to function more normally.  Right now I am at the point where just getting through the day is hard as it is.

Yes, eventually we are still moving to Cleveland to be close to Grant’s family but we are waiting to see what the outcome of my disability application will be.  I just hate feeling so uncertain about our lives.

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About mamasick

Emily Cullen is a pen-name. A former local radio personality for seven years, I still remain active in the voiceover business. My husband, “Grant”, and I have been married since 2002 and have already experienced the “worse, “poorer, ” and “sickness ” of marriage. We both suffer from chronic illnesses and diseases which have progressed. My diseases include Rheumatoid Arthritis, Fibromyalgia, and most, recently and seriously, Lupus. Despite all of the challenges we have faced, we were able to have a little boy, “Tyler,” born in September of 2006, which is the best thing to ever happen to us. Tyler has been classified as a “special needs” child with diagnoses which include Anxiety, OCD, and Tourette’s Syndrome. We also share our home with two cats. We live in New Jersey and I enjoy reading fiction and learning more about taking care of my son. Before my son, I used to enjoy watching movies…watching television for that matter! Before Lupus I enjoyed fine dining and fine wine. No longer able to work, I am now wondering, “What will I do with the rest of my (somewhat) young life?” Blogging sounds like a good start!
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