Longing for Normalcy

I wish things would settle down a bit so I could do some regular things, such as keeping a regular blog! Lately I feel like I don’t even have time to eat.  Due to some insurance changes, Grant has had a tough time finding a new Gastroenterologist as he suffers from Crohn’s Disease.  On Thursday night he called the ambulance because his pain was just too bad.  They admitted him but released him on Sunday. Grant  is one of those people who hates hospitals; he get stir crazy there.  He is stabilized and is following up with his doctors.

Francesca was able to stay with me to help with Tyler, who seemed to take daddy’s hospital stay pretty well.  I told him that he was in a hospital like Curious George has been in and that they were going to make daddy’s tummy feel better.  I am glad Grant is finally getting to the help he needs.

I feel like we are so different from other families.  When I am with other people and they talk about their jobs or their homes, it feels so foreign to me.  I long to be a part of that crazy life of a working mom and all the energy that comes with it.  Kind of like, “I don’t know how our family does it, but we do it”!  I long for a routine of a full-time job that is stimulating, and fun weekends with my child and vacations that we can afford.

When you have chronic illness, life is so uncertain.  You don’t know whether your health will improve, stay the same or get worse.  It’s the same thing with your finances.

Right now our family could use some stability and normalcy right now.  Stop the roller coaster, I want to get off!

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About mamasick

Emily Cullen is a pen-name. A former local radio personality for seven years, I still remain active in the voiceover business. My husband, “Grant”, and I have been married since 2002 and have already experienced the “worse, “poorer, ” and “sickness ” of marriage. We both suffer from chronic illnesses and diseases which have progressed. My diseases include Rheumatoid Arthritis, Fibromyalgia, and most, recently and seriously, Lupus. Despite all of the challenges we have faced, we were able to have a little boy, “Tyler,” born in September of 2006, which is the best thing to ever happen to us. Tyler has been classified as a “special needs” child with diagnoses which include Anxiety, OCD, and Tourette’s Syndrome. We also share our home with two cats. We live in New Jersey and I enjoy reading fiction and learning more about taking care of my son. Before my son, I used to enjoy watching movies…watching television for that matter! Before Lupus I enjoyed fine dining and fine wine. No longer able to work, I am now wondering, “What will I do with the rest of my (somewhat) young life?” Blogging sounds like a good start!
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