F*cking Interstitial Cystitis!

After having increasingly worse vaginal pain, I went to my primary care practice on Thursday.  Since I have only just started taking care of my health again in August, I don’t have a gynecologist.  I was seen by an intern, who had to call in the doctor.  So I had two strange men peering into my vagina.  They found nothing wrong with me, although they did believe I was in great pain.

And then, I felt like an idiot, but party because my memory is so poor and partly because I had blocked it out, I said, “Oh yeah, in January I was diagnosed with Interstitial Cystitis.”

I.C. is a chronic, long-term inflammation of the bladder wall and is associated with other conditions I have such as Lupus, Fibromyalgia and Ulcerative Colitis.

The diagnosis of Interstitial Cystitis was the last straw for me back in January.  I was in excruciating, non-stop pain causing me to be unable to sleep for three to four days.  The urogynecologist wanted to do a procedure on me in the hospital, the diet he gave to me was ridiculously strict; no coffee, no spicy foods, almost all fruits, and yogurt, even things that are known to be good for you were off-limits on this diet.

The depression from being turned down for disability, pain from extremely dry mouth, having to apply for food stamps, again, and now this diagnosis, was severe enough to make me go in-patient.

I ignored my I.C. diagnosis and I eventually went into remission.  Until about a month ago.  I tried treating it with an over-the-counter medication for yeast infections which helped for a little bit and was relieved a bit by my period.

Which brings me back to Thursday when I couldn’t take it any more.

I can definitely relate it to a dietary change.  I had made chili and I put the chili powder in my bowl only since I am the only one who likes spicy food.  I put in a lot.

My doctor is asking for my records from my urogynecologist in New Jersey and will try to connect me with one here.  I see him again in two weeks.

I cannot wait two weeks.

I am swallowing ibuprofen like candy.  Wearing jeans is horrific.  It just hurts all of the time.

I am going to call him tomorrow and say I need something stronger for the pain, a quicker appointment, something!

Grant is afraid that this bout with I.C. will put me into the same frame of mind that it did the first time, but I was very depressed before I even got the diagnosis.  Yes, I.C. is a very difficult disease to deal with but I feel more rational about it now.  I know the diet is vastly different than the way I like to eat, but if it will stop the pain I am all for it.  And maybe it will turn out that it is only one or two foods that bother me and not the entire list.

Instead of looking at it like “Not another g*d-damned diagnosis!”, I am back to looking at it like, “Well, what’s one more diagnosis?”

 

Photo Courtesy of  ICN Sales

 

 

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.
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3 Responses to F*cking Interstitial Cystitis!

  1. Lauren MacKenzie-Stead says:

    I have IC as well, and I completly understand that the diet is absolutly insane!! The pain makes you feel like your whole nether reigons are on fire. That is enough to make any unsick person go crazy let alone someone like us with 50 other problems to deal with. I try to stick somewhat with the diet when I have a flare, but not during a normal time. The meds that they can give you really help. It is really good to have a urologist during these times. If you were still in MA, I would recommend mine. Just keep on thinking that the pain will go away, and you will soon no longer look like a cowboy walking after he had a long ride on his horse. This sucks, but there are things that can be done. Just breath and wait it out till you get to the doc. You can do it, you have done it before, and you can do it again.

    Lauren

  2. A Ginn says:

    I had nephritis added to the never ending extreme pain of IC. After 4 yrs I was finally diagnosed with this and got Tramadol to help me cope. This diagnosis came from me, when one day, I could not pee and I told the GP, that I needed to see a urologist. Biopsy confirmed IC. I also had other abdominal pain and had many MRI’s CT scans. I have hyperhidrosis from my head, face and down my back; that is often extreme and alarming to see. 12 years on I asked for a colonoscopy. Previous barium enema normal. I have colitis. I also believe that I have schlerosing cholangistis previously diagnosed as cocksackie virus. My career? Out of work every 6 months and cannot get support as a disability.

  3. mamasick says:

    Sorry to read about your story, A Ginn, you definitely have a lot going on. It took me a long time to get disability, even though I had Lupus and other dx. What really did it for me was becoming bipolar, but of course I’d give anything not to have it, to be able to work and give my son more opportunities. Hope you get a break and manage to have some happy holiday times.

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