The Newtown Shootings: A Possible Explanation

It is Wednesday, December 19, 2012, five days after the Newtown, Connecticut shootings which left us with 27 children and adults dead at the Sandy Hook Elementary School.  I have wanted to get this post out since the day after the shootings, but due to circumstances beyond my control, and the fact that I have a little boy whom of course is home from school on the weekends that I enjoy being with, I have been unable to do so.

When I heard about the shootings on Friday, I like most Americans and the world was saddened, but unfortunately, not shocked or surprised as most of them were.  And because I have been delayed in writing this post I thought that I would be too late to be the first person to tell you this.  That surely by now, SOMEONE would have already written a post like this, but I am shocked that no one has.  That despite all of our “experts”, our psychiatrists, our profilers of killers; that NO ONE has figured out WHY this has happened.  And that chronically ill mom blogger, Emily Cullen, sitting here at my laptop with just a Bachelor’s degree and with some unfortunate life experiences, has a, what I believe, is a pretty good grasp on this sad situation.

Some of what I will tell you is from news sources that I will link you to.  Some of it is just because I. JUST. KNOW. IT.

Because I believe I know why 20-year-old Adam Lanza shot those children.  Everyone is asking “Why?” and “How could he have killed all of those innocent children?” and “What kind of a monster would do such a thing?”  I don’t have those questions because I believe I know exactly why and how and what, and I am going to tell you, given my “background”, what I think.

There are so many variables in this shooting.  There are a cast of characters if you will forgive me for being so dramatic.

Let’s start with Mr. Lanza himself, shall we?  What do we know about him so far?  We know that he may have suffered from a Personality Disorder.  Oh, he may have, huh?  Okay we know that there are many different Personality Disorders out there so let us pick one…um…let us pick for argument’s sake Borderline Personality Disorder, in which we read that “That there is strong evidence to support a link between distressing child experiences, particularly involving caregivers, and BPD.  The types of experiences…include…early separation from caregivers, emotional or physical neglect, emotional abuse, and parental insensitivity…that BPD is caused by an interaction between biological factors and an “emotionally invalidating” childhood environment (or an environment where the child’s needs are not being met).”

Hmm, that seems interesting to me, doesn’t it seem interesting to you?  So, there seems to be a link between BPD and one’s caregivers.

Well let’s take a look at Mr. Lanza’s caregivers, shall we?

We have Nancy Lanza, Adam Lanza’s own mother, whom Mr. Lanza had the audacity to shoot.  Can you even imagine shooting YOUR OWN mother?  No, I can’t imagine shooting MY mother either but let us take a look at Mrs. Lanza whom has been described as a “gun-hording survivalist who was stockpiling weapons in preparation for an economic collapse.”

Whoa.  That seems a little…”out there”…don’t you think?  Are any of you reading this currently stockpiling weapons in preparation for the economic collapse of America?  I know I’m not, I guess I can’t say the same about the rest of you, but to me I would say that sounds a bit…disturbing.

Indeed, Mrs. Lanza’s sister-in-law, Marsha Lanza, says that Mrs. Lanza “was part of the ‘prepper’ movement that fears an economic collapse will lead to a breakdown in society.

The WHAT MOVEMENT?  I have never before heard of the ‘prepper’ movement have you?  I guess I am just uneducated.  I GUESS you can never be TOO prepared.

“Nancy Lanza (52) had five registered firearms, had begun stockpiling food and taught Adam how to shoot. He is believed to have taken three of her guns — a Bushmaster .223-calibre, and two handguns, a Glock 10 mm and a Sig Sauer 9mm — in the school massacre after he shot her dead in bed.”

Wait now, Mr. Lanza, who MAY have some type of personality disorder took three of her guns, a what, huh, and a what’s that did you call those guns??

You’ll just have to excuse me because I am woefully uneducated and ignorant about all of the guns that America has to offer it’s citizens.  You can call me stupid if you want, but I have personally never heard of any of those guns, have you?

Poor, innocent, Mrs. Lanza, how horrific that someone’s own son would shoot them! I mean my God, Mrs. Lanza appeared to all as a devoted mother, so I don’t understand what might drive a young adult to shoot his own mother, do you?

It is SO hard to understand what can be possibly be going on inside the mind of your child, teenager and young adult, isn’t it?  You who are parents like me or who have children older than my six-year-old, you have probably wondered what was going on yourself with your children, what ever would possess them to do the things they do??  I don’t know either.

We MAY not know exactly what is going on inside out children’s heads.  We parents are not mind readers after all, are we?

But we can SEE what our children are doing and HOW they are acting and we MAY CHOOSE to act upon what our children are doing, right?

Wait now, what’s this?  Mr. Lanza’s babysitter, Ryan Kraft , has come forward with some information for all of us wondering why? why? why?

Mr. Kraft babysat for Mr. Lanza when he was about 14 or 15 years old and Mr. Lanza was about nine or ten.  And “he says he recalls Nancy Lanza cautioning him never to turn his back on Adam — ‘to keep an eye on him at all times … to never turn my back, or even to go to the bathroom or anything like that.’ Kraft says he remembers Lanza as quiet, very intelligent and introverted, noting, “Whenever we were doing something, whether it was building Legos, or playing video games, he was really focused on it. It was like he was in his own world.”

“Nancy Lanza, says Kraft, was very involved in her children’s lives and loved them very much.”

Oh, she was INVOLVED now was she, and she LOVED them now, didn’t she?

Well I just don’t know about that, and I can only speak for MYSELF as a parent as I put myself in Mrs. Lanza’s shoes.  Gee, I would feel a bit uncomfortable around my little nine-year-old boy if I felt the need to keep my eye on him at all times, and to never turn my back on my little boy so much to the point where I was so scared about my little boy that I was afraid to even go into the bathroom for fear of what my little nine-year-old might do.

That horrible nine-year-old Adam Lanza, oh the little boy is quite a MONSTER isn’t he?  Yes, yes, see, my little nine-year-old boy is so scary, oh I am so scared of my little boy!

Hold on, now, Mrs. Lanza.  I think your child is just nine-years-old, that he is just a little boy, isn’t he?

But you see, I am not surprised that Mrs. Lanza thought that her nine-year-old boy was scary because I unfortunately know people, be they mothers, fathers, or grandparents that call five-year-olds and six-year-olds MONSTERS.

Wait just a second, Emily.  There must be something wrong over in your neck of the woods or in your world, or you must be exaggerating because five-year-olds and six-year-olds cannot be MONSTERS or called the next SERIAL KILLERS.

And I will say to YOU, hold on, it is not ME who is saying that little boys who are five and six are our next serial killers, it is the people that I unfortunately by luck of the draw in my life, know.

Okay now, well, personally, I don’t know about the rest of you out there, but if I indeed did think my child was a monster or happened to be scared of my little nine-year-old boy, I just might be inclined to get him some help for him.  Would any of you who are reading this get help for your scary, monstrous little nine-year-old boy?  You can call me crazy, and yes, many people around me have, but I would ignore those people calling me crazy and I as a mother would do what I thought was best for my child and would not listen to anyone else, and I would choose to ignore the parts of my brain, the small voices in my head telling me Oh, you are overreacting, Emily, there is nothing wrong with your little angel.  You do not need to expose yourself or your family and get help for your child because your child is going to be just fine.  Because if you just keep on being the good mother you think you are, that you KNOW you are, you can just sweep these incidents under the rug and they will just go away, and your little boy will be just fine now, won’t he?

Yes, I as a logical, mentally healthy, educated mother would CHOOSE to ignore those voices outside and inside my head and I would get some HELP for MY CHILD, wouldn’t you???

And lastly, Mr. Lanza’s father, Peter, who divorced Mrs. Lanza in 2009, after nearly 30 years of marriage.  Well, not much can be said about Peter Lanza, he seemed to stick it out and try to make a go of it, didn’t he?  But obviously, one does not usually divorce one’s spouse if things in the marriage are going well and you like your spouse and you like your situation.  And one might say that Peter Lanza appears to have been the lucky one in that family, with his gun toting wife and his scary little boy, that he got to leave that life and that family and that household.

“The couple agreed to split up their jewelry, clothes and family photos.  Adam would live with his mother, the couple agreed and they agreed to talk about the important decisions.

If it turned out they couldn’t agree on something related to Adam’s upbringing, Nancy Lanza ‘shall make the final decision,’ according to the Sept. 24, 2009 settlement approved by Judge Stanley Novak.”

Excuse me, Peter, but did I just read that right?  Are you to tell me that you found it necessary, for whatever your personal reasons were, to divorce your wife of almost 30 years but that you thought it was okay to leave your sons in the care of your gun-toting, ‘the end of the world is coming!’,  ‘I refuse to put my child in therapy’ freak of a wife???

I’m sorry, Peter, but as someone in the know as to how these things can go down, I’ve got a REAL problem with you doing that to YOUR. OWN. CHILDREN.

And sadly, to wrap this story up, let us talk of the children that were killed last Friday, because, please DO NOT get me wrong because I am VERY sorry that little children had to die due to Mr. Lanza’s parents whom SHOULD have POSSIBLY taken care of their own poor little boy.

Why did Mr. Lanza shoot those children, is the big question on everyone’s mind?

Well, I have no evidence here, I cannot find any connection between Mrs. Lanza and the children of the Sandy Hook Elementary School.  I have only unfortunate life experiences, those of myself and others to piece this one together.  But if I had to take a stab, perhaps Mrs. Lanza liked little children very much.  Meaning, perhaps she was a volunteer with children, or once a daycare teacher or a babysitter, or was maybe just a very nice woman that liked the children of the neighborhood.  That maybe was very nice to little Adam Lanza’s friends when he was growing up.

And I would think, that if I happened to be in an environment where I as a child felt that my needs were not being met by the parent who was supposed to love me, I MIGHT feel a little jealousy towards other little children.  Little children who are happy and whose parents love them unconditionally and respect them and take care of them.

Well let’s take me out of it.  Because I do not have any jealousies towards little children.  I have a six-year-old child and I love him, and respect his six-year-old self, and his six-year-old with special needs little self.

But could I see how a grown man, barely grown because he was after all just 20 and perhaps had a hurt inner child inside him…could I see how a grown man might possibly shoot his mother, innocent little children and then himself?

YOU’D BETTER BELIEVE I COULD.

ADAM LANZA-SANDY HOOK SCHOOL MASSACRE

 

 

 

 

 

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 2 Comments

Chronically Ill and Displaced by Hurricane Sandy

When I ask people in my Cleveland suburb if they know that many people are still homeless or unable to access their homes due to Hurricane Sandy’s damage, they are shocked.  I say to them, “It’s on the news, everyday”, and they say they either don’t watch the news or pay that much attention.

During the holiday season when you are caught up in the stress of buying gifts, and the holiday party fun, when you are home with your family cozy and watching Christmas specials and baking cookies, it’s hard to imagine that many families and individuals will be having their Christmas dinner at churches, high schools or restaurants generous enough to donate free meals.  They don’t have a home to open Christmas presents in.

I’m not saying this facetiously or trying to make you feel badly or guilty.  I think if I wasn’t from New Jersey and seeing the posts on Facebook from my family and friends about calls for donations or calls to volunteer, I probably would let Sandy slip my mind too.  When there is joy and celebration all around you, you don’t WANT to think about what is happening outside your little corner of the world.  I think this is just human nature.

Through Twitter I met a disabled, chronically ill man left homeless after Hurricane Sandy.  This is the story of John “JC” Colyer.

“I have a type of Ataxia called Cerebellar Ataxia.  It is a chronic disease that affects my balance, coordination and speech.  I have been on Social Security Disability since August 2010.  I worked for 14 years with “The B Street Band”, a Bruce Springsteen tribute band.  I fell and broke my left knee cap in January 2010 and that was it!

I have lived in Seaside Heights, NJ for 13 years and we took a direct hit from Hurricane Sandy on October 29, 2012.  I evacuated to a shelter on October 28th.  I spent 15 days in 3 different shelters.  The Red Cross and FEMA have been very helpful to me and I am grateful.  I now live in a FEMA funded hotel until I can go home, hopefully in three to six months.

It’s been traumatic; stress makes my Ataxia worse, but I try to keep positive and be supportive to others, especially to children.  I’m finding what I call my “new normal”.  It is still very shaky but I’m still trying!

I’ve adapted my life to my disability, I don’t try to fight it!  I can find things to complain about but I choose not to.”

The Hurricane Sandy Relief Concert was held last night (12-12-12).  If you would like to give to the relief fund, you can purchase donation gifts for your friends on Facebook, text $10 donations to 50555, or use check-ins to Foursquare or Get Glue.

Or you may donate through my original Hurricane Sandy Relief Effort post.

picture003

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , , | 1 Comment

Too Sick to Be Seen?

Since August/September I have had a bad cough.  I thought it was my usual seasonal allergy thing, where every year I cough, especially at night, and have to spit up what looks like clear liquid (sorry to be kind of gross there).

I thought when I moved to Ohio, to the Midwest, that maybe my allergy would go away.  Instead it got worse.  The worst was at night, although it would happen during the day too.  I would wake up coughing and choking on my saliva.  I couldn’t stop coughing.  I took to having cough drops, something to drink and tissues to spit up in at my bedside.  It would affect my sleep because it would happen more than once a night.  It flared my Costocondritis.

So many other things were going on with me; my Lupus, Fibromyalgia, Myofascial Pain Sydrome and Interstitial Cystitis were flaring.  Who could worry about a cough, although it was very disruptive.

On the suggestion of my mother-in-law, I started sleeping sitting up, thinking it was a post-nasal drip sort of thing.  It was very hard to sleep like this and it would take me a while to go to sleep.  It didn’t work, I was still having coughing and choking fits and I went back to my bed.

After seeing my Primary Care Doctor many times at the clinic on the East side of Cleveland for my ailments, I finally came in last week just for the cough.  I made the mistake of telling him it probably was allergies.  Never tell a doctor you think you know what your diagnosis is.  They are either going to get right on board with you if it is something easy like allergies, or think you are a hypochondriac if you say you have cancer. 

First I saw the Nurse Practitioner.  She said, “Well you probably have GERD. Do you have a sour taste in your mouth?”  I told her I did not and said I did not have the other symptoms she listed.

The doctor listened to my chest and said my lungs were clear and gave me an OTC medicine similar to Claritin and a prescription for a generic nose spray if that failed.

I started taking the tablets.  Two days went by and no relief.  That didn’t seem right to me so I called the manufacturer’s drug information line and asked how long I should be on the medication, when would I feel some relief?  “Well, you are supposed to feel some relief within six hours!”, she said.  I dropped the tablets and tried the nose spray with the same results.

In the meantime, sometimes when I would start to speak all that would come out would be coughing.  I would have “attacks” during my daily life, always having to carry cough drops or needing people to get me water to stop my cough.

One day I even coughed up a trace amount of blood as I spit into the sink.  My voice is hoarse.

This week I vowed to see my doctor again.  This was crazy, I wanted to say ‘Where do we go with this next?!’

On Friday I came in as a walk-in, since a large part of their appointments are walk-in.  I usually come in as a walk-in because it sometimes can take two weeks to see the doctor.  The receptionist told me that they didn’t have walk-in hours until noon and it was 8:30.  I had always thought it was walk-in every day, I guess I had never tried to come on a Friday morning.  I could see if my therapist was free at any point this morning, I thought, then I could come back around 11:30.

I told the receptionist that’s what I would do and she said, “Well the doctor has a very busy schedule.  You are not guaranteed to be seen.”  “What if I come in at 11:00 or even at 10:30 and I am the first person on the walk-in sign-up list.  Surely he would be able to see the first person on the walk-in list.”  This logic seemed to baffle her and she replied that she still could not guarantee it.  When I told her I had had a cough since August, she became a bit alarmed and said that she would make me the next person to see the Nurse Practitioner, and that she would make the determination whether I would be able to see the doctor in the afternoon.

While I waited I started talking with a couple of older women.  They were both disabled, they told me, both turned down by the court and both awaiting appeals.  Ohio is one of the hardest states to be awarded disability.  I told them why I was here and one of them said, “Girl, you could have lung cancer.  My friend had a cough for a long time, she was diagnosed with lung cancer and she dead now.”

I also told them I had Lupus.  The other woman said, “Oh yeah, Lupus is very serious, you can definitely get cancer with Lupus.  My friend has Lupus and now he has prostate cancer too.”

I wanted to thank them for their encouraging words but decided to go back to my iPhone.

The nurse-practitioner called me in.  “You were here last week, what do you want now?”  “I came back for the same thing I was in for last week,” I said.  She walked me back to the office.  “Did you even try the medicines the doctor gave you?”  “Yes, of course, I tried both of them and they did not work so that is why I am back.”  “I told you last week you had GERD, you probably have GERD.”  “Ma’am, with all due respect I know what GERD is and I do not have GERD.”

She was putting my symptoms in her computer to see what might pop up.  I said, “I don’t think you will be able to diagnose me like that.”  “You’re right.  Ma’am you are too sick to come in as a walk-in!  Walk-ins are for emergencies only, people who have run out of their medication, who might have the flu or pneumonia.”  I apologized to her, said no one had ever told me that, but didn’t having any undiagnosed cough since August count as an emergency?

While we were speaking she was looking at my chart, at my medicines.  An anti-depressant, anti-anxiety medication, a sedative when needed, and something for sleep.

“Wait, are you anxious?”

“No, I am not anxious, I have had a cough that has not gone away since August.  Look, just because I am bipolar does not mean I have not had a cough since August.”

And then, doo, doo, doo, doo, the radar had hit it’s mark and focused right there.

“Oh, so you’re bipolar.”

This has been happening in every doctor’s office since I have moved to Ohio.  As soon as they learn I am bipolar, all thought of the possibility of me having Lupus or Interstitial Cystitis goes out the window.  I have offered them medical records of my diagnoses, but they won’t even look at them!

Grant had had a good idea.  If they will not look at my medical records, why not bring the judge’s decision on my disability case?  Which addressed all of my diagnoses and said that yes, my bipolar was a part of what went into me winning my case but I mostly won because I had Lupus and other physical illnesses that prevented me from working. It was the government, you have to believe the government, right?

I offered them to her and she said, “I don’t want to see those!”

She asked me when was the last time I had worked and what did I do?  I am not sure what this has to do with my cough but I told her that eight years prior to being disabled in 2008, I had been a Recruiter for the pharmaceutical industry where I recruited in Phases I-IV clinical research, recruiting from the Associate to the V.P. level, people who were doctors, nurses, scientist, people like herself.

She said, “Well, you’re very smart!  I have hard that some bipolar are smart.”

As if I was in a vegetative start and some scientist has just discovered that there was some spark of life in the old girl.  I was too stunned to even reply.

“How is your sleep?”

“It is very poor due to my cough and my pain that no one around here will treat.”  I told her about the horrendous experiences I had had at their beloved Cleveland Clinic.

“Well the Cleveland Clinic is a for-profit hospital.  I’m just telling you like it is.  They don’t have to treat you.”

“I know they don’t, but since they are a hospital dedicated to helping sick people, and this is America, I think the decent thing is that they should. ”

“Well you are MANIC!

“Ma-am, unless you have a degree in Psychiatry or in Psychology, you can not pronounce me manic.”

“I was a psychiatric nurse for 10 years!”

Oh my God, you were??  For 10 years, and you are just learned in your meeting with me that people with Bipolar can be smart???  God help the poor in-patient souls when you were caring for them!

She said, “Well the only thing I can offer you is cough medicine and cough drops, do you want that?”

Why not?

When I got home and read the label on the bottle it said, “Ask a doctor before using if you have had a cough that won’t go away.”  There were no instructions as to how to take it.  In addition it is possibly dangerous for people with Fibromyalgia to take products with Guaifenesin.  But since the nurse only looked at my one diagnosis of Bipolar Disorder it is safe to say she did not read that I had Fibro. I also feel pretty confident in saying that even if she had know I had Fibro, that she would not have ever heard of the controversial Guaifenesin Protocol.

I made an appointment to see the doctor on Monday, still baffled. All it would have taken was five minutes of the doctor’s time to say, “Holy crap, I cannot handle you here.  I can not X-ray your lungs, I don’t have the equipment to diagnose you with anything.  Here is a referral to see a Pulmonologist!”

I could have possibly been seeing a Pulmonologist this upcoming week.  Instead I have to see a Primary Care Doctor and who knows when a Pulmonologist can see me now with the holidays?

Rich or poor, insured or not, “sane” or Mentally Ill, to me it just seems a shame.

How about you?

 

 

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , , | 3 Comments

Way to Get a Sweet Pair of Pants and Underwear!

Inspired by Mama Kat’s Writer’s Workshop.

3. What was the last thing you bought?

On Saturday, Tyler and I set out with two objectives:  To get an Advent Calendar (or a Countdown to Christmas Calendar) as it was December 1st, and to do some grocery shopping at Marc’s.  I figured that at the most we would be back in an hour and a half.  Just two places to go, right?  One thing in one store and some groceries.

We head to Target because they have an Advent Calendar for two dollars and that works for me.  Tyler asks if he could look at the toys.  I figure why not, we have nothing better to do and maybe this can give me some more ideas.  Luckily there is one more scooter to use, I say luckily because they only have two.  Just two for their huge store.  I get onto the scooter and we zoom to the toy department, with Tyler complaining that he has to walk and I get to ride.

We look at all the toys, including some for girls, as Tyler knows I like toys too, the girlie ones.  Strangers ask me if I know where things are such as the Angry Birds…I think…Wooden Board game.  I try to help the woman find this one Angry Birds game in the hundreds of Angry Birds toys.  I am getting so frustrated I ask her nicely why she doesn’t go on the internet to get her impossible to find Angry Bird game that her nephew wants?

After being in the toy department for an hour I tell Tyler that we are picking up the Advent Calendar and leaving.  “I’m hungry!”, Tyler wails.  Since it has now been more than an hour after the huge lunch Tyler ate, I know he once again must fuel his furnace.

We zoom to the snack bar.  I am able to walk in the snack bar and so I park my scooter right outside the snack bar.  “I want an ice pop!”, Tyler wails.  Knowing that an ice pop won’t do anything to fill him up, I bargain with him that he can have anything at the snack bar, except the ice pop.  Cookies?  Ice cream?  Yogurt?  Tyler isn’t buying it.  He sinks to the ground and starts crying.  Please know that Tyler is not throwing a temper tantrum.  The pediatrician has told me because he is so tall, thin and active that I need to feed him as much as he wants.  At least five snacks a day.  If not, he gets chest pains, stomach, cramps, his legs give out on him and he becomes tearful and irrational.

Knowing we are going to have a major meltdown soon, I tell Tyler that he can get the ice pop but he must eat something else too.  I don’t even have the money for one snack, let alone two but one has got to do what one has got to do.  Tyler chooses one of those chocolate chip cookie ice cream sandwiches, we get some tap water and sit down.

My eyes gaze over to my scooter and…it is gone!  Someone has stolen my sweet, sweet ride!  I feel as upset as if my car has been stolen.  I cannot believe it!  Of course, I know how desperate people are for scooters…but still I would never steal someone else’s!

While Tyler is eating he says, “Mommy, that girl is in my class, I know her!”

Of course he does.  Whether we have lived in New Jersey, Massachusetts or Ohio, Tyler always knows everyone.  No one ever comes over to me and says, “Emily, woo hoo, all right!  What are you doing at the county fair?”

The little girl is shyly looking over at Tyler. You know, like one of those, look, smile, blush and look away things?  I say, “Tyler, why don’t you go over to her and say hello?”

The little girl and her family sit next to us.  Tyler and the girl are sitting next to each other, the girl, blushing and embarrassed, and Tyler, oblivious.  He doesn’t need a girlfriend he has told me, even though most of his kindergarten class is hooked up.  I have told him he has made a wise decision and to concentrate on his kindergarten studies.

By now I have to pee like crazy.  I ask the little girl’s family if they would watch Tyler for a moment but Tyler says he’s got to go to the bathroom too.  Normally, I would assist him but I have to go so badly I just kind of wish him well and beat it into a stall.

As I am walking out to the sinks, I hear, “Mommy, I have bad news.”  I am not phased.  Tyler’s bad news can be that toilet paper has stuck to his shoe or that there is a bug crawling on the floor.

I look over at my son and his front pants look as though someone has dumped an entire bucket of water centering on his crotch!  “What happened, baby?  Didn’t make it on time?”  “No, mommy, I did.  I thought I was peeing in the toilet but it turns out I was peeing on my pants.” “Ah, yes, we’ve all done that before, do not worry.”  Meanwhile, my mind is going in so very many directions at once.

“Oh my God.  He needs clothes!  Wait, we are in Target, I can get him new pants and underwear.  Are you crazy?  You can’t afford that, just take him home, we are less than ten minutes from home!!”


“Okay, Tyler, let’s go home right now, we can change you and then we can come back and get the Advent Calendar and go grocery shopping.”
“Mommy, Anissa will see!  She can’t know that I peed in my pants!”

“Honey, she is in the snack bar, I will sneak you right out the door!”

Tyler is now moving up against a wall in the ladies’ bathroom, front side in.
“I’m not leaving the bathroom, everyone will know I peed my pants!!  Mommy PLEASE!”
“Holy crap, my choices are either scar my child for life by making him walk out the door of Target or buying him new pants and underwear!  I guess I am going for the new clothes.”


Only I cannot get Tyler out of the ladies’ room!  Who is going to watch him while I buy clothes for him?
I flag an Associate down who is so flummoxed he must call his manager.  The manager who looks about 18, says if I can just get Tyler into the men’s bathroom he will watch him until I can get the clothes.  I must trust that this teenager will not mistreat my son.
Tyler crawls along the wall from the ladies’ to the mens’.  “Little dude”, the manager says, “It’s cool, I am going to watch you while your mom gets you some clothes.”
Using a scooter right now is impossible I need to be…SUPER MOMMY!  I frantically run to the boy’s department.  Target for some strange reason has great prices on everything except when it comes to boys’ pants.  I finally find a pair of jeans on sale for 11 bucks.  Now, underwear.  I only need ONE but I must buy six. I go for The Justice League.  I head to the check-out and of course the lines are enormous.  I am getting more nervous with my son alone with that teenager.  I start asking people on the line, one buy one, if they would let me go ahead, my child has peed his pants, is hanging out in the men’s room, etc.  Ohioans are a friendly bunch and most let me go.  Only one says disgustedly to me, “Whatever!”

The pants and underwear cost me $22 and change.  Clothing tax is such a bitch!!

I get back to the men’s room and the teen and my son are having a fine time. I say, “Look what Mommy has got for you, Tyler!” and the manager says, “Sweet!” and I guess it is.

I struggle with dressing Tyler in the men’s room while the manager guards the door for us.  We walk out and head to the Christmas department.

Target is sold out of the Advent Calendar.

Photo Credit:  hitflix.com

 

 

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , | 4 Comments

A Post Impossible to Name, Part 3

Before you read this post, you may want to start at Part 1 and then go to Part 2.  The following post will be the last post in the series for 2012 because this should be a time of joy and peace.

This post was originally written in May of last year.  I am rolling out the cast of characters for you, post by post.

Inspired by Mama Kat’s Writer’s Workshop.

2.) Not your mother’s daughter…how do you parent differently than your mother did? Is it a good thing or a bad thing?

When I saw this prompt, an overwhelming sense of dread came over me.  I do not want to write it, I do not want to think about it, and I know I will cry as I write it. But yet it finally must be said.

I credit one of my best friends for saying, “Once you become a mother, your have the right to judge your own, and a lot of issues come up.”

Ain’t that the truth!

Growing up, my mother would say, “We should have named her Joy because that’s what she is to us.”  I was beautiful, talented, smart, and a good kid.  I graduated college with honors and went on to have an eight year career as an on-air radio personality.  I changed careers and became a recruiter for eight years.  I was good at everything I tried.  I became more beautiful. My mother was so proud of me.

And then, I got sick.  Starting from being diagnosed with Rheumatoid Arthritis in 2003, fast forwarding to me now with Lupus and a dozen other things wrong with me, including Mental Illnesses.  Now I am the child who has not worked for over three years, the child who lives under the poverty line waiting for her disability, the child who, if she doesn’t have to go out, spends most of her time on her lap-top in bed. The child with a beautiful little boy of her own who has to stay in day care because she cannot take care of him full-time.

And now, the woman today is a far cry from the child who was her mother’s joy.  I KNOW it, I FEEL it, it just IS.

But she did her job, she parented me well, I am well over the age of 18.  She does not owe me anything, she does not have to take care of me, support me or help me.

Except that, now that I am a mother, I think she still should.  And I know that, God forbid, should anything of this nature happen to my child, I know I WOULD.

Because for me parenting does NOT end when one’s child is 18, and love is NOT based on what one’s child looks like, what they are capable of, or whether or not they can do fun things like go to a museum or travel or walk without a cane or a wheelchair around a pretty town.  It is unconditional and it is forever.

My son is four-and-a-half years old now.  He has Tourette’s Syndrome, OCD, Anxiety and maybe even more.  When I look at him all I see is how beautiful he is, inside and out, how talented he is and how smart he is.  I can’t go into the ocean with him, or the pool, and a dog cannot be near us, but he is still lots of fun. He coughs, his shoulders jerk, he has to walk a certain way around our home, he has to touch things, and he has to move back and forth while we walk, but he still makes me laugh and still fills my heart with joy.

Maybe my son will be one of the lucky ones.  Maybe he will grow out of his Tourette’s and eccentricities.  Or maybe he won’t.  It doesn’t matter, because he will always be my perfect son, and if he needs me I will be there for him, even if he is 50 and I am 86.  He will always be my child, the unborn baby that I fell in love with, the preschooler that I am still in love with.

One of my son’s fears is that when he becomes a “big boy” or a man, that he will have to leave our home.  He gets scared that if he learns to dress himself, that it is one step closer to us pushing him out the door.  One day he asked me if he ever smoked a cigarette, would I make him leave?

He asks if he can always live with my husband and I, over and over again.  And the answer is always, “Yes, honey, yes, you can live with us forever, you never have to leave us.”

Of course I know that one day he will leave me, and most likely will marry and become a father.  One day he might be yelling at me, and running out of my home with my car keys.

But do you have to leave me, baby?  No never.  And can you come back to us?  Yes always.

For I am your mother and you are my son.  My love for you will only grow stronger.  And I will take care of you always, and help you as much as I can.

Because parenting doesn’t end when you turn 18, my angel. Parenting is forever, until I die, and even after that, know that I will still be watching out for you.  Our parent/child bond will always be.  I am willing, for as long as you are, and for as long as you need me.

I will ALWAYS be your mother.

“Grown don’t mean nothing to a mother.  A child is a child.  They get bigger, older, but grown?  What’s that suppose to mean?  In my heart it don’t mean a thing.”  ~Toni Morrison, Beloved, 1987

 

 

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | Leave a comment

Portrait of the Artist as a Young Man

Inspired by Mama Kat’s Writer’s Workshop.

2.) Ask your child to draw a portrait of you and share it with us. (Inspired by Scary Mommy)

When I asked Tyler if he would do a portrait of me he said very seriously, “Yes, but you will have to model.”  I agreed, at the same time wondering how my six-year-old had picked up such lingo.

I chose a green sweater with silver earrings, a silver necklace and even put some lip gloss on for the occasion.  Who am I kidding, I also put on some body lotion so that I would feel “beautiful” as I sat for my portrait.

When Tyler came home from school today he looked at me and said, “You look ugly!”

“Whaat?”

“You are not dressed up enough, put on your wedding dress!”

“Tyler, this is what I am wearing!”

“It is ugly!”

“Tyler, you were with me in the store when I tried it on and you said that you liked it!”

“Oh..oh, yeah.  Well, I guess it will be okay then.”

After a snack, a couple of episodes of Bullwinkle and some playing, Tyler was ready.  I reapplied my lip gloss.  I took my seat at the table with my arms folded and smiled.
“That’s good.  Hold that smile and you are going to have to hold it for several hours because this may take awhile.”

A few ripped up sheets of paper later and Tyler had his masterpiece:

Very…Picasso-esque, don’t you think?

I studied it a bit and said, “Tyler, are these my breasts?”

And he said, “Yes, I drew your breasts.”

Indeed.

 

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | 7 Comments

Prostituting Myself

After some successful Black Friday shopping, Tyler and I headed to Marc’s to do our weekly shopping.  Marc’s is, to me an Ohio wonder as their groceries are about 50% less than the local Giant Eagle’s and a third of the prices that I paid back in New Jersey.

You do get what you pay for.  The aisles are cramped, the lines are long and there appears to be some sort of anarchy at work there.  But mostly no one minds because their either love the bargains they are getting or cannot afford to shop anywhere else.

It is another rough month for our family, trying to make our money last until I get my disability award.  It has been difficult with both of our cats absolutely needing veterinary care and Tyler and I having to buy clothes and snow boots for a Cleveland winter.

Before shopping, I estimated the price of what was on my grocery list and thought I had enough money.  Marc’s only accepts cash or check, which doesn’t really matter as I only have cash.

As the cashier was ringing up my purchases, I started getting worried that I would not have enough.  I tried to get her to stop ringing but she didn’t.  We were next to one of those claw games where you can win an Angry Bird, and Tyler was begging me to let him try.  The total came up to $63.99.  I gave her sixty dollars.  It was time to turn to the change I had.  Would I have $3.99 in change?  I nervously started counting my quarters, Tyler continued to beg me to let him try the claw machine.  I came up with $3.00 in change, the other .99 looked doubtful.

From behind me I heard, “Vy?”

“Excuse me?,” I said.

“Vy don’t you do this at home?  That’s all I want to know, Vy you don’t do this before you come here?”

I turned full around to him.  I faced him.  I said, “Why don’t I do this at home?  Because I am homeless, bankrupt and uninsured, okay?  I am not counting my pennies for fun, I am counting them because these are all I have!”

I turned back to counting.  The cashier was helping me.

“I am sorry”, he said.

“That’s fine”, I said. “Perhaps next time you will think before you speak.”

I took away a Gatorade. (I somehow feel the need to justify my purchase to you.  Grant and I need Gatorade because our mouths are extremely dry from our medications and Gatorade seems to be the only thing that works for us.)

“Here, now I have enough money to pay.”  This seemed to confound the cashier and I had to explain to her why I now had enough.  She fumbled with taking the item off and coming up with the new total and I feared the manager would have to be called.  I was so angry, all I wanted to do was leave.  Meanwhile Tyler was still screaming for an Angry Bird and I can barely tell him “no” or “maybe another time”.   I didn’t have the time to be able to explain to him how these games are almost impossible to win and that they mostly waste your money.

The cashier finally got it right and then I heard, “Here, take this.”  I turned around and the man was holding out a $10 check.  I could not understand him fully but he said something like I am sorry, I hope this helps or this may not be too much, just a little something for you.

I looked at this sweaty, slimy bastard and I took the check and said thank you.

Nothing would have pleased me more to tell him where he could put his check but the truth is $10 means I can get Tyler the game he wants for Christmas.  I took it for him.

I am tired of constantly having to prostitute myself for my family.  I will keep doing it because I need to but it does take a toll on me.  Every time I swallow my pride or get treated poorly on a daily basis because I am uninsured, homeless and sick, part of me does die.

I know there is light at the end of the tunnel.  I received a fully favorable decision on my disability case in the middle of October but as it stands I have heard nothing back, and indeed was told not to even bother them for at least 30 to 45 days.  November 29th will be the 30 day mark and I will be calling.  Where is my money?  I have been waiting three years to be to be told that yes, the government now believes I am disabled and I continue to wait, a prisoner of their whim, as to when they decide to pay me.

“Lovely Ladies”, courtesy of ukstudentlife.com

 

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , | 1 Comment

On Black Friday

I used to think the people who shopped on Black Friday were insane.  Camping out days before, fighting for the last toy, spraying pepper spray at their fellow shoppers…I couldn’t understand it and certainly would never be a part of this mind-boggling ritual.

Today I am shopping on Black Friday for the first time.  Not because I have become insane or because I wish to mace my fellow man, but because I have to.  My son needs new boots and sneakers and a BF sale is the only way I can afford to buy them.

The economy is still recovering, indeed, some may argue that it has never recovered.  I have become low income due to my health, some because they have lost their job, and some because they are underemployed.

We have to go out on BF.  Our children won’t understand why Santa did not give them their #1 toy.  Spouses want to give their significant others a special gift.  They have to get presents for their children’s teacher, bus driver, and whomever else is expecting a gift in their lives.

I understand the crazy desperation of the shoppers.  It is the same way at the Food Bank.  Those who get there two hours before it opens so they can be toward the front of the line.  Those who argue with people about who got out of line.  All of them desperate that the Food Bank will run out of food, even though if one is towards the front of the line it is obvious that they will get food.

The next time you watch video of shoppers winding around the building waiting for Walmart to open, or parents fighting over the last latest Elmo toy in the store, try to remember that they may not have a choice, that they may not be doing this for fun.

I am going out on Black Friday.

But I promise I will not be bringing pepper spray.

Photo courtesy of Patheos.com

 

 

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | Leave a comment

Thankful

Inspired by Mama Kat’s Writer’s Workshop.

2.) We’re going around the table and it’s your turn to share what you are thankful for…go!

 

To say that I am thankful for my husband, child and I being able to be together after being apart for six months is obvious.

And so something happened to me on Tuesday for which I am highly thankful for:

On Tuesday I got my Ohio handicapped placard.

I had one in New Jersey and was literally too sick to be able to get one in Massachusetts, but now after nearly two months of living here I have gotten one in Ohio.

I moved here with some of my diseases such as Lupus, Interstitial Cystitis, and Fibromyalgia starting to flare, and now due to the swinging temperatures of fall, Myofascial Pain and Costochondritis have followed.  I am blessed as to having a Primary Care Physician willing to write a prescription for one.  I received his Rx last week but have been too busy to fill out the application.

On Monday I had an appointment to see a Rheumatologist at The Cleveland Clinic.  I had to park far away and I had a long walk once I got into the hospital.  I arrived at the doctor’s office barely able to walk, shaking with pain.  I nearly fell getting on the scale and I had extreme difficulty getting on the exam table.  I tried not to scream.

After the doctor’s appointment I had to take the elevator and go to the laboratory for blood work.  When I was finished I asked the phlebotomist if I could get an escort and a wheelchair as I was now unable to walk back to my car. The phlebotomist took me herself, dressed only in her uniform.  When I thanked her for her kindness she said, “My daughter has Myofascial Pain and I understand what you are going through.”

I realized that I MUST get my placard as soon as possible.  That I was only getting worse and how would I shop for the holidays?  My heart sank when I saw on the application that it could take up to ten business days.  Hoping to speed things up a bit and to save on the cost of a stamp, I took it to my local Bureau of Motor Vehicles.  The woman at the desk took my check for $3.50 and my application and typed a lot.  “Okay”, she said, handing me back some paperwork.  I took it from her and inside was a handicapped placard.  “But…I thought it would take up to ten business days.”  “Oh, no.  Not if you bring your application in person.” I had tears in my eyes and relief flooding through my body.

I am one of those people who appear not to need a handicapped placard.  You may wonder how a woman who can walk on two feet and doesn’t look sick can have the nerve to park in a handicapped space.  What you do not know is that due to my joint and hypermobility issues I am unable to use a cane.  What you do not see is that when I get into a mall, department store or a museum I must use a scooter or be pushed in a wheelchair, and I don’t even look like I deserve one of those mobility devices either.

I used to wonder, “How could this woman use another person’s handicapped placard just so she could get a good space at the mall during the holiday season?”  I used to think, “Maybe if that woman would lose some weight she wouldn’t need that scooter.”  I used to get angry when I saw people at Disney World in a wheelchair get to be pushed to the front of the line when they were fully able to get up to walk to the ride.

And now…

I don’t.

 

 

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , | 2 Comments

Mama Sick’s Hurricane Sandy Relief Post!!

“I’ve been having more difficulty than normal sleeping since Sandy came to town. My sincere hope is that even if you cannot read this, you are all in a warm, safe place with all of your loved ones and that you have not lost hope. Hopefully, very soon, power will be restored to those still waiting, and along with it heat. It will be years before we recover from this…to whatever extent we do recover from this. Be safe, be strong.”

I lived in New Jersey for 35 years up until this year.  New Jersey will always be home to me.

When I read the above quote on Facebook on November 5th from a man that I went to high school with, I started to cry.  As I write this post about 32,000 customers in New York and New Jersey remain without power.  Although only one of my family and friends that I know of had their home destroyed, I realized what the effect of going without power for even a few days had done to the people affected by Hurricane Sandy, especially during the cold months.  I read the Facebook posts of my friends and those on the organizations that have sprung up for Hurricane Sandy, “Our throats hurt from breathing in the cold air when we sleep”, “What will happen to all of the senior citizens at Covered Bridge?”

I realized I wanted, needed to help and decided to donate my blog space, to ask my readers to give whatever they can to help, if they have not already.

I have chosen two organizations and one personal appeal to spotlight.  Personally, I like donating to a specific, small organization, or specific people so that I know exactly where and to whom my money is going.  It seems to give me an even greater feeling that I am doing something good, you know what I mean?

Highlands, New Jersey, The Highlands Elementary School

 

Photo courtesy of Slate Magazine 

The principal of this school, William Ciullo, taught at my high school while I was there.

“…Our town was devastated by the hurricane, and we have, literally, hundreds of displaced families. Many of my students are homeless. However, a walk downtown will show you the indomitable spirit of a community that is finding strength in the love of one another as they work to re-build.

… I …am asking that you find the time and a charitable heart to send a donation to me to support my students and their families. Please donate what you can and make checks payable to: HIGHLANDS ELEMENTARY SCHOOL, 360 NAVESINK AVENUE, HIGHLANDS, NEW JERSEY, 07732. Please direct it to my attention.”

The Food Bank of Monmouth and Ocean Counties

The holiday season is always a busy time of the year for food banks across the nation and now it comes on top of Hurricane Sandy.  The Food Bank of Monmouth and Ocean Counties normally serves 260 meal programs, mostly church pantries, providing more than seven million pounds of food to people in need each year.  “Now in addition to that, we have this huge need from people who have never had to stand in a line for food before”, said Marion Lynch, the Food Bank’s Media Coordinator.  Since the storm, the Food Bank has delivered food for more than 450,000 meals to food pantries, shelters, relief agencies and other emergency feeding programs.

The Food Bank is in need of monetary donations.  Food Banks use money to take advantage of bulk foods and other deals the general public does not have access to.  Monetary donations also help fund fueling it’s trucks, purchasing supplies and paying for necessary equipment such as generators.

Information on how you can help can be found here.

Help Us Rebuild Aunt Dee’s Life!

A Gerritsen Beach home courtesy brooklynnews.com

When Christine Miserandino, the Spoon Lady put out a call for action on her Facebook page to help her long-time family friend, “Aunt Dee” start over again, I had to act.

Aunt Dee lives in a section of Brooklyn designated a Zone B area, where the storm surge flooded and destroyed most homes. “When the hurricane hit, my family was  only able to save her wheelchair, her medicine and her cat, Mickey”, said her niece, Kaitlyn Hanley.  Other than that, Aunt Dee has lost her home and nearly everything else.

“Every penny will get us closer to getting Aunt Dee back on her feet again.”

To donate click here.

I think Kaitlyn said it best:  every penny helps.  I realize many of my readers are low-income due to being chronically ill, as am I.  I know it might be even harder around the holidays to find funds to donate.  But even if you give five dollars or even a dollar, it is one more dollar that they will have because of you.

I know that a lot of people will want to donate to The Spoon Lady’s family friend, but the other organizations need help just as much.  Perhaps if you are thinking of donating ten dollars, you many consider splitting up your donation to support two causes.

If you truly feel you cannot donate, then please do not feel badly about it.  You can still help by sharing my blog on your Facebook or Google+ pages or on Twitter.  You can use the Facebook and Twitter buttons at the bottom of this post if you like.

If you donate, please comment here and let me know.  Also, if you are able to, please tell these causes that Mama Sick sent you!  And please share this post with everyone you know.  I am not expecting thousands of dollars in donations from this blog post, but by working together, let’s see what we can do!

Thank you and be well!

Emily

 

Share and Enjoy: These icons link to social bookmarking sites where readers can share and discover new web pages.
  • Digg
  • StumbleUpon
  • Facebook
  • TwitThis
Posted in Uncategorized | Leave a comment