Health Update # 3: A Shake-up

Today I saw a doctor who is a Physiatrist, or a Rehabilitation Physician.  I like this doctor because she also has a through knowledge of Eastern medicine and has done acupuncture on me before when I could not find any relief for my Costochondritis.

The appointment was difficult because she disagreed with a lot of my treatments and even my diagnoses!  It made me feel like everything I was doing was wrong.  She felt that I should be tested for some rarer muscle diseases for my calf pain and she gave me the name of a Physical Therapist who is supposed to specialize in treating people with Fibromyalgia, although she did not think that this was the cause of my pain.

She felt that I was depressed (I mean, come on, who wouldn’t be with my life?) and wanted me to see a psychiatrist for better depression management.  She thought that I was taking an absolutely wrong medicine for my Fibromyalgia and that I should not be on any narcotics, which right now are the only things that are giving me any relief!

Basically she questioned everything my doctors are doing for me.  It was quite shocking and upsetting.  I felt like my whole world was rocked.

She is going to speak with my Rheumatologist about better treatment for my Fibro and more blood work for the muscular diseases.  I am going to find out which psychiatrists take my insurance and call this guy for PT.

I trust her, but this was just so jarring.  My life is in such a state of flux and now to add entirely new tests, medicines and therapies to the mix….ahhhhhhh!

We are trying to move, I am applying for disability and must await the outcome, and at the end of September I lose my COBRA and if my disability is not approved, I must go on NJ Family Care, which pretty much means changing all of my doctors and not necessarily being able to even keep on the same drugs.  Not to mention our finances.   If I wasn’t depressed, you would have to call me insane!

As I said, I do trust her and am going to follow her advice for as long as I am able to.  Perhaps I will get some improvement in the remaining months I have.  Big sigh.

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About mamasick

Emily Cullen is a pen-name. A former local radio personality for seven years, I still remain active in the voiceover business. My husband, “Grant”, and I have been married since 2002 and have already experienced the “worse, “poorer, ” and “sickness ” of marriage. We both suffer from chronic illnesses and diseases which have progressed. My diseases include Rheumatoid Arthritis, Fibromyalgia, and most, recently and seriously, Lupus. Despite all of the challenges we have faced, we were able to have a little boy, “Tyler,” born in September of 2006, which is the best thing to ever happen to us. Tyler has been classified as a “special needs” child with diagnoses which include Anxiety, OCD, and Tourette’s Syndrome. We also share our home with two cats. We live in New Jersey and I enjoy reading fiction and learning more about taking care of my son. Before my son, I used to enjoy watching movies…watching television for that matter! Before Lupus I enjoyed fine dining and fine wine. No longer able to work, I am now wondering, “What will I do with the rest of my (somewhat) young life?” Blogging sounds like a good start!
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2 Responses to Health Update # 3: A Shake-up

  1. Nancy says:

    I sure hope she’s right and can get you on a path to feeling better! That had to be mind-boggling to get such a completely different opinion than what you’ve been given before.

    Nancy’s last blog post..Fitness Friday – July 10th

  2. kriscoop says:

    Just wanted to let you know that I sympathize with getting different advice from different doctors…especially when trying to find a balance between traditional and alternative treatments. It’s really hard, I hope that your docs can come to an agreement.

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