A couple of weeks ago I was diagnosed with Narcolepsy, or excessive daytime sleepiness. What a relief it was to have an answer and to know there was a medication out there that could help me!
But when I ran it by my pharmacy I found out that that my co-pay was $239.00 which wasn’t in my budget and my insurance wouldn’t allow me to accept the coupon that the pharmaceutical company who made the drug offered.
My advice for trying to get co-pay help is to call the pharmaceutical company directly. Through them I was able to network until I finally found an answer for me: Caring Voice Coalition.
“At CVC, we recognize the needs of patients with rare and chronic diseases. By providing assistance through the programs we have available we hope to meet not only the financial needs of patients but to also to provide them with important support and educational resources,” according to Jennifer Previtera, Director of Communications for Caring Voice Coalition.
CVC supports diseases that include Huntington’s Disease, Complex Partial Seizures, Severe Chronic Pain and Narcolepsy, and they were able to provide me with 100% of my co-pay. For a full list of supported diseases click here.
Some of the other services CVC provides are helping patients find new or improved insurance coverage, patient education and helping to navigate through the SSI/SSDI process.
What if you don’t see your disease listed here? Click here on the Caring Voice website, or
as I said, call the pharmaceutical company who manufactures your drug for help.