Lovely In Her Bones

I have been dealing with either Osteopenia or Osteoporosis for four years now. When I had my first bone density test I was classified as having Osteopenia. Despite calcium supplements, my next test (two years later because insurance won’t pay for having it done sooner) revealed Osteoporosis. I was told I couldn’t go on drugs like Boniva or Fosamax because they were only for post-menopausal women and I was getting my period regularly, and still am.

Yesterday I went for another bone density test. It’s a quick test but I got a little suspicious when the tech wanted a more detailed shot of my left hip…and didn’t do my right hip. I asked her when I would hear back from my primary doctor about the results and she said probably within the week.

A couple of hours later I had an email from my doctor.

“Your bone density is BELOW THE EXPECTED RANGE FOR AGE. I recommend that we establish with our endocrinologist, to see if you need medication at this point or not…”

I called the endocrinologist and my appointment is for August 8th.

WHAT AM I SUPPOSED TO DO IN THE MEANTIME?!

Exactly how brittle are my bones? Am I in immediate danger of breaking a hip? Do I have the bones of a 70 year old woman? An 80 year old? Why is this happening to me at the ripe old age of 43?

I can’t pull myself away from the internet. I learned that my diseases: Rheumatoid Arthritis, Lupus, Ulcerative Colitis and even Depression can contribute to low bone density.

So can Leukemia, Lymphoma and cancer of the bone marrow.

I can’t believe I have to wait nearly two more months for my appointment.

This reminds me of the time a radiologist told me I could have breast cancer based on my mammography. I was told to make an appointment with a breast specialist and I got one..two months later. The spot on my mammography was deemed an old cyst by the specialist, but I spent an agonizing eight weeks in limbo.

Has this ever happened to you?

How did you get through the waiting period?

bonedensity

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.
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4 Responses to Lovely In Her Bones

  1. Mrs4444 says:

    When I was pregnant with Kendall, an ultrasound showed a cyst in her brain that sometimes is a marker for Trisomy 18. My options were to have an amniocentesis to be sure or wait seven weeks for another ultrasound. We met with a geneticist who said our chances were something like 1 in 1000 that she had T18. Our chances of a spontaneous abortion from the amnio was 1 in 250. Of course, abortion was also an option. It was a long seven weeks for my husband, but I just didn’t worry about it; I knew she’d be okay, and I was obviously right. I think it’s easier for some people than others to not worry. I wish you luck, and for God’s sake, avoid climbling ladders and playing soccer 🙂

    • mamasick says:

      How frightening for you, Mrs. 4444! I’m glad things turned out okay. I don’t feel well enough to play soccer and I wouldn’t be caught dead climbing a ladder. I sometimes, however, play with Tyler on the playground, going on the slide or other equipment. It stinks that I have to give that up, at least until I learn more.

  2. Junie says:

    okay Beautiful Mamma CALM THE OPPPS down, now listen honey we’ve all done been down the road of “what if”, we’ve worried ourselves to death, caused ourselves oh how many sleepless nights. I can tell you’ve got yourself into such a whirlwind of “what if” just reading your post got me dizzy.
    Haven’t you ever been taught a method to use when your mind runs off like this sweetie? If not I’ll help you work one out.
    I would say ‘if’ it was the bones of 70/80yr old your appointment would be sooner, even very busy docs make room for urgent/bad results (I’ll tell about my thyroid surgery soon)
    Don’t stop playing, you haven’t broken anything so far, just don’t go crazy which I know you don’t have the energy for. I’m sorry this is short honey, I’ll get back soon, I’ve got behind on somethings and working on not doing the chicken with the head cut off thing myself.
    CALM SSHH CALM Beautiful Mamma.

    • mamasick says:

      Thanks, Junie. I know I have to chill because I have a long time to wait. It’s true, I haven’t broken a bone yet, I just have to act sensibly.

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