No Grant in 2017

For the past two years I’ve had my co-pay for my hypersomnia medication paid by a non-profit agency. Even the generic of the medication is expensive, with my co-pay being over $300 a month.

In October I got a letter from the agency saying that I would have to apply for a grant for 2017. This
was new because I have automatically had my grant renewed every year. The start date to apply was December 5th, so I put it on my calendar.

On the afternoon of the 5th I said “Shit!” because I hadn’t applied for the grant yet. I went to the site and found that the money for Narcolepsy had already been allocated. There would be no help for me. I called the agency and they said I should keep checking the site because more funding could come through. I check it everyday.

There is absolutely no way I can afford the medication by myself. I have been rationing my pills, saving them for days I need to stay up through the day. But after they run out I will go back to sleeping a good part of the day.

I hate when Tyler is home and I have to take a nap. That he has to be on video games as I sleep the day away.

Meanwhile, somehow I managed to sprain my lower back. I finally went to the doctor last week and she prescribed muscle relaxers, heat, massage, etc. I am reading this book that says back pain is the result of tension, a problem you can’t face, so your brain manufactures the pain. It comes highly recommended by Howard Stern of whom I am a big fan. If I get anything out of it I’ll be sure to let you know!

My Christmas shopping for Tyler is done except for his stocking but I haven’t gotten a tree yet or sent Christmas cards out. Pressure!

How are your holidays going?

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.
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