I Guess Negative Comments Are Better Than None At All

Posted on May 20, 2009 by

With some of the negative comments I have received, I do feel the need not to defend each and every point made by a few people who know me only through Twitter, but to make a general statement.

Lupus is a disease that is different for everyone. It can run the gamut from a flare every so often to being fatal and everything in between If you or someone you know has Lupus and is able to work full time while raising children or is living many years with very few problems, then that is the lucky hand you or they have been dealt. This does not happen to be MY experience with the disease. This also happens to be MY blog.

I got my first AutoImmune Disease over twenty years ago, if you must know. Since I don’t want this blog just to be about Diseases I did not feel the need to run down all of my diagnoses and how long I have had them. My diseases besides Lupus affect the way I feel as a whole, and are exacerbated by Lupus.

Up until my Lupus diagnosis I did work at a high paying job and worked hard all of my life. My husband is disabled, and if you read my post carefully you would have seen that I would not be going into any depth about his illnesses since this is my blog.

If you wish to speak about yourself or your friend’s illnesses, then please do so somewhere else. This is my story, my experience. If you were so disgusted with me, then why have you kept following me on Twitter and why would you even care to see what I would write on my blog?

If you feel that you know who I am in my 14o character Tweets then please do yourselves a favor and stop following me. If you or anyone would like to get to know me better and read about MY experience, then please continue reading this blog.

Good health to all of you.

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About mamasick

Emily Cullen is a pen-name. A former local radio personality for seven years, I still remain active in the voiceover business. My husband, “Grant”, and I have been married since 2002 and have already experienced the “worse, “poorer, ” and “sickness ” of marriage. We both suffer from chronic illnesses and diseases which have progressed. My diseases include Rheumatoid Arthritis, Fibromyalgia, and most, recently and seriously, Lupus. Despite all of the challenges we have faced, we were able to have a little boy, “Tyler,” born in September of 2006, which is the best thing to ever happen to us. Tyler has been classified as a “special needs” child with diagnoses which include Anxiety, OCD, and Tourette’s Syndrome. We also share our home with two cats. We live in New Jersey and I enjoy reading fiction and learning more about taking care of my son. Before my son, I used to enjoy watching movies…watching television for that matter! Before Lupus I enjoyed fine dining and fine wine. No longer able to work, I am now wondering, “What will I do with the rest of my (somewhat) young life?” Blogging sounds like a good start!

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