The 4th and Other Stuff

I am so happy to be in bed knowing I have made it through yet another long weekend!

Grant, Tyler and I visited my aunt and uncle for a barbeque yesterday and we had a nice time. Tyler enjoyed playing with his cousins, meeting the newest baby of the family and broccoli (yes, weird child!)  The kids were having fun playing “football” and “baseball” of a fashion when some neighbor shot off a round of firecrackers and Tyler was freaked out about how loud it was for him, he was scared too.  We took him indoors and kept him there for the rest of the evening. Everyone says to try not to think about Tyler’s next hearing test which is not for another six to nine months, but it’s difficult when he refers to sounds being too loud for him on a daily basis.

On Friday I got my blood work back that my GI doctor ran and it appears I am negative for Celiac Disease.  I know I said I hoped I didn’t have it but now I am faced with Well, what is wrong with me, then?  I am not the kind of person to be satisfied with saying I have some sort of malabsorption issue, I want a name for it!  I am going to call the Gastroenterologist tomorrow and see if he has any other thoughts and try once again to find an Endocrinologist.

My mother comes in tomorrow for a visit that for me is too short.  Being sick, I can really use as much help as possible.  But my mother lives in another state with her second husband. After almost two years I really can’t think of him as my step-dad and that I have a step-brother and sister.  I feel too old for that.  But that is for another time, another post.

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About mamasick

Emily Cullen is a pen-name. A former local radio personality for seven years, I still remain active in the voiceover business. My husband, “Grant”, and I have been married since 2002 and have already experienced the “worse, “poorer, ” and “sickness ” of marriage. We both suffer from chronic illnesses and diseases which have progressed. My diseases include Rheumatoid Arthritis, Fibromyalgia, and most, recently and seriously, Lupus. Despite all of the challenges we have faced, we were able to have a little boy, “Tyler,” born in September of 2006, which is the best thing to ever happen to us. Tyler has been classified as a “special needs” child with diagnoses which include Anxiety, OCD, and Tourette’s Syndrome. We also share our home with two cats. We live in New Jersey and I enjoy reading fiction and learning more about taking care of my son. Before my son, I used to enjoy watching movies…watching television for that matter! Before Lupus I enjoyed fine dining and fine wine. No longer able to work, I am now wondering, “What will I do with the rest of my (somewhat) young life?” Blogging sounds like a good start!
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