Sick Mom, Well Mom, Part II

I think the thing I wonder most about my mothering skills while faced with being chronically ill is: Where does normal frustration with my child end and where does my illness begin?

I stayed home seven months when Tyler was born.  I suffered from some of the usual issues; lack of sleep, on my part and Tyler’s, and postpartum anxiety.  But I never tired of playing, singing and just being with him.  I seemed to have an endless amount of patience with him. Grant would say I was the best mother in the world.  Strangers who would see us together would say, “You’re a really good mother.”

As he became more mobile, I loved taking him to the park, pushing him on the swings, even going down the slides and playing on the jungle gyms myself.  Motherhood was finally the completion of the life that I wanted.

Now I am sick, but Tyler is also about to turn three.  I’m having difficulty potty training him, he throws food on the floor, I have trouble getting him to go to bed and stay in bed, he doesn’t listen to me.  The pain and fatigue get to me and sometimes I feel as if even though it is just Saturday morning, I already need a break.

I think most people would say I am still a very patient mother.  I have never hit Tyler, nor come close and have never yelled at him.  But sometimes, I just want to go into my room, wrap myself up with heating pads and cry in pain and frustration.  It seems to be the worst when I wake up and at night.

And then comes the guilt, and the thought that I would have more patience if I was well.  And the wondering if I will ever get the chance to be a Well Mom again.

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About mamasick

Emily Cullen is a pen-name. A former local radio personality for seven years, I still remain active in the voiceover business. My husband, “Grant”, and I have been married since 2002 and have already experienced the “worse, “poorer, ” and “sickness ” of marriage. We both suffer from chronic illnesses and diseases which have progressed. My diseases include Rheumatoid Arthritis, Fibromyalgia, and most, recently and seriously, Lupus. Despite all of the challenges we have faced, we were able to have a little boy, “Tyler,” born in September of 2006, which is the best thing to ever happen to us. Tyler has been classified as a “special needs” child with diagnoses which include Anxiety, OCD, and Tourette’s Syndrome. We also share our home with two cats. We live in New Jersey and I enjoy reading fiction and learning more about taking care of my son. Before my son, I used to enjoy watching movies…watching television for that matter! Before Lupus I enjoyed fine dining and fine wine. No longer able to work, I am now wondering, “What will I do with the rest of my (somewhat) young life?” Blogging sounds like a good start!
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