Wake Me Up Before I Go-Go

You know that title isn’t even funny?  Even though it is?

If you read me regularly, follow my tweets, or are on my Google+ (as Emily Cullen), you pretty much know what’s going on in my life at all times.  Lately I am starting to have as much trouble as Job himself.  As you can gather from the title, I am having a horrible time staying awake for much of the day!

About 20 years ago I was in a major car accident.  The EMT said to me, “I don’t know how you were able to walk out of that.”  Yes, I was extremely lucky.  Always wear your seat belts! Anyway, about two months later, I was finding major difficulty getting out of bed in the morning.  I felt as if I was waking from a comatose sleep and I was extremely foggy. Frightened that my doctors might have missed something, I made an appointment with my family doctor.

“Have you experienced any kind of trauma lately?”, he asked.  I told him about the car accident in October and he told me that my body was still reacting to what I had experienced.  “See if it does not go away in a month.”  And sure enough it did.

I am really hoping that this is the same kind of thing.  I have been experiencing new trauma on a daily basis, who would want to get out of bed, much less, stay awake?  But lately, it has become worst, by the day, in fact.  I noticed on Monday that I needed five cups of coffee, some with ice cream in it, just so my eyes would stay open…while driving.  Yes, driving is the worst.  Like a newborn going for a car ride, my body wants to sleep..except it is me behind the wheel!  This, need I say, has been most distressing.  I don’t drive more than an hour any where due to my pain and fatigue, but this is downright scary.

I can drink a cup of coffee and go right to sleep afterwards.

Yesterday, I didn’t go anywhere but I was having trouble staying awake anyway, from about 3:00 in the afternoon onwards.  I took a nap, but it was not enough.  I took another nap at around 7:30 p.m. for about an hour.  I still could barely stay up.  I made Grant go out for ice cream.  “But you told me that you were on a diet, that I shouldn’t buy you ice cream, even if you begged!”  “Do you think I am fat?!  This isn’t because I want it, this is an experiment!!” I hissed.

Grant ran in terror and fear to the supermarket.

I put the ice cream (coffee) into my coffee and put in some mini Reese’s Peanut Butter Cups.  I fell asleep while drinking it.

“Go to bed, Emily, I will deal with Tyler,” Grant said, both scared and sad.

So this is where I stand.  Or sit.  Or lay.  Or sleep.  Tomorrow I see my Rheumatologist.  He is supposed to judge me to be well enough to take my immunosupressant drug, Orencia on Monday. Or he may want to switch me to the newest drug for Lupies, Benlysta, since I seem to be failing on Orencia.

And now I have this narcoleptic-like issue to deal with.

As always, I will keep you posted.

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.
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3 Responses to Wake Me Up Before I Go-Go

  1. Dave Z. says:

    Emily, with as much pain medication that you’re on, I’m not surprised that you need to sleep. You need the medication, but a major side effect of many pain meds is a tendency to sleep, especially SSRI, SNRI, opioid, and opiate agonists. I have been on many of those myself at various times for my problems, and was unable to function or stay awake. Still, since I’m not a doctor (and don’t even play one on TV), I’d advise discussing this with your doctor – but I’m betting that his opinion does not differ significantly from mine.

  2. Tendai says:

    I have the same problem and it is so scary to be driving by myself or worse with my son. New things keep popping up and scaring my husband too. But no matter what’s going on with me, you have it much worse and I feel for you. I keep you in my prayers on a regular basis because I can see how you and your family are suffering. Lord, please just grant us your mercy and give us a reprieve.

  3. Emily, I am so sorry you’re having such a struggle. I know that when I have to take pain meds (even just one at bed time) I feel like I’m living in Zombieland during the day. Definitely talk to your doctor about it.

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