I’m Going to Disney!

I can’t believe that tomorrow I will be taking my son to Disney World! Grant and I have been very amicable during our separation, so although it sounds crazy, the three of us will be going together!

Ever since Tyler was born it has been my dream to take him to Disney. I never thought I would, and although it’s not the smartest financial decision we have ever made, we decided to do it. I know I would have spent the rest of my life regretting it if we didn’t take him.

Since Kindergarten Tyler has been hearing about his classmates’ and teachers’ Disney experiences. He was so excited and I asked him if he thought we would go to Disney World one day. “Oh, yes!”, he said very matter-of-factly. How could I look into the face of my child who has been through so much in his young life and tell him we would never be able to afford to go? At seven years old, this will be his first vacation.

I will be using a scooter down there and I have a pack of steroids that will hopefully help with aches and pains and give me more energy. I am still scared that I may be too tired or hurting too much to be able to do everything we have planned, or that I could come down with a full flare-up of Lupus, Fibromyalgia or any of my other conditions.

It took a lot of time but we have planned our every move down there and have selected all the Fast Passes we can have. Due to so many abusing the policy, Disney no longer allows disabled people to simply go to the front of the line. Families were actually hiring disabled people to go to the parks with them, although why you’d want to see Disney with a stranger just so you can get past the long lines is beyond me. The new policy is that you speak to one of the cast members at the ride and he or she tells you that since the line is currently 40 minutes long, you can come back 40 minutes later and go on the ride with no wait.

While this does seem fair, I believe that the disabled are still at a disadvantage. When that park opens in the morning, I’m not going to be able to sprint like all the able-bodied people will. I will simply not be able to move through the parks like they will and will wind up doing less than them.

Besides writing a post-Disney post I will be uploading pictures on twitter and on my Facebook page. Please remember to “Like” my page!

Well wishes and extra spoons are appreciated!


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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.

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