Update on My Son’s Health

Grant and I have decided to switch therapists for Tyler. We had gotten as far as we could with this therapist and have now opted for a psychologist who specializes in OCD, phobias and Tourette’s Syndrome. The doctor practices Cognitive Behavioral Therapy which has been shown to be an effective treatment for the issues Tyler has. Grant and I saw the doctor alone for a history on Tyler and then Tyler met the doctor too. His first real session starts next week.

Tyler has another diagnosis that he’s had for a while that I just haven’t written about. It was something I’ve never heard of before. It’s called Primary Motor Stereotypy . Tyler is classified as having Complex Motor Stereotypy and his symptoms include hand and arm flapping, wiggling his fingers in front of his face and finger wiggling. The movements often appear or increase in frequency when a child is stressed, fatigued, anxious, excited or engrossed in an activity.

There is no real treatment for Stereotypies and the type Tyler has usually lasts for life.

We are less than a month away from school and I really worry about Tyler being teased or bullied, whether it’s the stereotypy, the OCD or the tics. The older he gets the more noticeable these things will become as children are expected to sit still during class. In his second grade class last year the only thing that happened was that Tyler was humming and the girl sitting next to him told him to stop it.

Tyler is taking tae kwon do, so hopefully he won’t have to be a victim of bullying.

Every night I pray I have the mental and physical health to parent and support Tyler the way he needs. We think we have found him a good therapist and for now that’s the best we can do.

Tyler's idea of a perfect summer; the pool and video games!

Tyler’s idea of a perfect summer; the pool and video games!

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.
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6 Responses to Update on My Son’s Health

  1. Y’all will be in my prayers as you start your journey with a new therapist. I hope it is effective for Tyler.

    My has an extreme case of being introverted, and he hasn’t been bully about it – yet. I know he may one day be bullied especially with him being the youngest in the class. We are going to get him into the same classes in order to defend himself in case he is ever a victim.

    I’d love for you to share Tyler’s update (and future updates) with us at Chronic Friday Linkup. It closes at midnight on Wednesdays. It can be found at: http://www.beingfibromom.com/chronic-friday-linkup-3/
    Brandi Clevinger´s last blog post ..Solution for Problems

  2. mamasick says:

    I guess there’s a lot of reasons to fear bullying and teasing of our children. Tyler really likes tae kwon do! I’ll check out your link-up, thanks for the invite!

  3. Brittany W says:

    Kids can be pretty mean when it comes to stuff like that. I hope that your journey with a new therapist goes well and Tyler doesn’t ever become the victim of bullying.
    Brittany W´s last blog post ..Battery Park Book Exchange

  4. mamasick says:

    Thank you, Brittany, I hope so too!

  5. Trish says:

    I pray your strength in the Lord. I have a brother that is OCD and has some other problems. Also, I have worked with kids that wiggled their fingers in front of their face. I never knew what it was called. God is able to see your family through this. Some kids can be so mean sometimes. I can remember being bully when I was a child. No child should have to experience this. Ny heart goes out to you and your family.
    Trish´s last blog post ..The Best Smothered Quail Recipe Ever

    • mamasick says:

      Thanks, Trish. Every night I ask God to make me healthy and give me energy so I can be the parent my son needs me to be.

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