Linking up with Being Fibro Mom‘s Chronic Friday Linkup
If you have been a regular reader you will know that I’ve been experiencing nausea and a low grade fever since last September with no doctor being able to tell me what’s going on.
I was finally able to see my Rheumatologist. When I explained my symptoms to him he said, “I’m curious to know why you would choose to see a Rheumatologist for these symptoms.” I was a bit shocked but I told him I always think of Lupus when running a low grade fever but he said that was not one of the prominent symptoms.
He said that when patients experience Fever of Unknown Origin (FUO) the first step is to see an Infectious Disease specialist and if nothing turns up, a Hematologist/Oncologist. He told me he was going to run a lot of blood tests and they took ten vials of blood plus a urine specimen. I may have gone to the “wrong” doctor but he was the first one to give me some direction.
It was the first time that certain tests came back as out of range and instead of being happy about it like I thought I would because I’m desperate for a diagnosis and treatment, the feedback from the doctor was that I should make an appointment with a Hematologist/Oncologist, which to me is about the scariest doctor to see.
I think of my therapist telling me that my nausea was probably due to depression and I am angry that she made me think for one second that this was in my head. Every time a doctor doesn’t know what’s wrong with you, they want to go right for a psychological diagnosis.
I picked my Hematologist/Oncologist out of the many from Cleveland Clinic. I read her patient reviews and one of them said that the doctor actually hugged her. I wanted a doctor that hugged people so that was a big selling point for me.
When I called to make an appointment the hold music and information said, “Welcome to the Cleveland Clinic Cancer Center.” There was even an advertisement for wigs that they sold at the clinic. It was one of the scariest things I have ever heard.
When I got through, the scheduler asked if they had access to my test results through the clinic’s system. She told me a nurse was going to study my results and they would get back to me.
In about a half an hour I got a call back to make my appointment which is in mid July. I felt like they had been looking to see if I was sick enough to be seen.
I am trying not to freak out but I can’t help it. I am doing better today. I know I can’t be a mess until I see the doctor, I’ve got to get it together for my son’s sake.
Next week I already had an appointment scheduled with my primary care physician with blood work ordered so perhaps she will be able to shed some light on my results. Normally I research my lab results, and I did to a point but what’s the use of making myself more upset than I already am? It doesn’t have to be cancer, it could be a blood disorder.
Your prayers and good thoughts are appreciated.
Not my real test results.
How scary for you. Will be thinking of you. I hope it is something far less sinister than your imagination will be thinking right now X x
Yep, Lucy, my imagination IS absolutely running wild! It’s something I have to work on. Thank you for stopping by!
Oh my goodness, you must be terrified. I’m so sorry that you are going through this but will be sending positive thoughts your way. Just because these Drs deal with cancer, it doesn’t mean you have cancer. Stay strong although that must be hard. Sending hugs and thanks for joining the #weekendblogshare
Hannah Spannah´s last blog post ..Weekend Blog Share 01/07/16
I know it doesn’t have to be cancer but I have a tendency to catastrophize! Thank you for the good thoughts, Hannah!
Seeing the “wrong” doctor is how I got most of my diagnoses oddly. They’re often more likely to think outside the box.
My haematologist was the one who diagnosed my Ehlers-Danlos and now they are the department interested in a genetic cause behind lymphoedema. Its scary, frankly terrifying at times, but seeing one doesn’t mean you have cancer *hugs*
Kath
x
Sending love from http://bendybeauty.com
#WeekendBlogShare
Your absolutely right, Kath, it doesn’t have to be cancer, but my mind just has a way of going in that direction! Expect the best, prepare for the worst, I always say. Thanks for stopping by!
I guess there are a number of things it could be but it’s good that you’re getting scheduled now so that you have a chance to catch whatever it is as early as possible.
That is ridiculous that your therapist said it was depression! I wonder how she thinks a fever could be psychological. These people seiously need to quit taking the easy way out by attributing everything to psych!
I hope Cleveland Clinic gets to the bottom of this soon!
Hugs,
Pippit
Yes, Pippit, my positive results weren’t off the charts so hopefully whatever I have will have been caught early. Be well!
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