Diagnosis!

After over a year of chronic nausea I am very happy to say I have finally been diagnosed with Celiac Disease.

Celiac is an autoimmune disease. When wheat, barley and rye are eaten a person’s body mounts an immune response that attacks the small intestine. These attacks lead to damage on the villi, small fingerlike projections that line the small intestine, that promote nutrient absorption. When the villi get damaged, nutrients cannot be absorbed properly into the body.

villi-tips

Celiac disease is estimated to affect 1 in 100 people worldwide. Two and one-half million Americans are undiagnosed and are at risk for long-term health complications that include Central and Peripheral nervous system disorders, vitamin and mineral deficiencies, and even some types of cancer. It can take years to diagnose a person with Celiac so I guess I am lucky I found out relatively quickly.

There were a few times throughout my illness that I looked at Celiac Disease but I only had one of the symptom, which include vomiting, diarrhea and weight loss. My doctor says people may sometimes not have any symptoms.

Currently the only treatment is a gluten-free lifestyle. That means no baked goods, pasta or pizza with gluten – forever. When I got my diagnosis I ate my last piece of pie, pumpkin, and on my birthday I went to my favorite pizza place to have my last real pizza.

I’ve been gluten-free ever since and it hasn’t been so bad. Jacques has been great in researching and making gluten-free recipes for me. Pretty much anything that is made with gluten can be made without it and taste pretty good. I’ve already found a bread and spaghetti that I like.

It’s no fun to have Celiac but I will gladly go on a gluten-free diet if it means an end to this nausea. I’m still getting nauseated sometimes but it can take weeks to feel good again.

I am angry with my former G.I. doctor who tossed me aside after I came out negative for one test she ran. I’m also angry at my (former) therapist who suggested that my nausea was a symptom of my depression.

I feel my story is a lesson that you should never give up and believe in yourself. Don’t accept an “It’s all in your head” diagnosis.

Do you have a story of a journey towards your diagnosis?

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About mamasick

Emily Cullen is a pen-name. I suffer from chronic illnesses and diseases which include Bipolar Disorder, Asthma, Diabetes and Fibromyalgia. I had battled Lupus and Rheumatoid Arthritis but there is no longer evidence of me having these diseases and my Rheumatologist has declared them to be "burnt out" of my system. I am separated from my husband, “Grant”. Our son, “Tyler” was born in September of 2006 and suffers from tics and Obsessive Compulsive Disorder, and is delayed in fine and gross motor skills. In my blog I seek to let sick moms know that they are not the only ones going through this, and to educate people about what can happens when one becomes catastrophically ill. I also strive to break down stereotypes of what a “Welfare Mom” is like. Anything that I have gone through due to being sick, is written on the pages of Mama Sick.
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3 Responses to Diagnosis!

  1. Courtney says:

    I’m so happy that you got a diagnosis! I’ve been GF for about 5 1/2 years now and there is a learning curve. You’ll try thing you think you’ll like and then end up throwing them out. Thankfully the market has introduced more GF food since I had to switch, and more mainstream brands are making the change as well. It seems limiting as first, but once you get the hang of it you’ll never know the difference 🙂

    • mamasick says:

      I really haven’t had a problem going gluten-free. You’r right, GF has come a long way! Even Walmart sells GF items and I’m getting a GF pumpkin pie for Thanksgiving! I have an appointment with a dietician in about a week and a half to make sure I am doing everything right but I am feeling a lot better!

  2. Finally!!! No one wants to be ill but when you are, you almost don’t care what’s actually wrong with you, knowing what it is and how you can help yourself is like gold. Like me, you’ll never be cured as autoimmune diseases are here to stay but at least now you know how to make yourself feel a bit better. I too was told it was in my head. I fought and fought and am still fighting, 4 years on with 3 diagnosis so far…. thanks for joining the #weekendblogshare

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